ILC that is PR neg

JudyO

Looking for survivors that are ILC and PR negative. Thanks, Judy

jessie123

A close friend of mine was diagnosed 4 years ago with ER 25% and PR 0%. She is doing fine. However, she did have to have chemo.

jessie123

Oh, and yes she had ILC.--- stage 2

Beesie

Check out the PR negative threads... there are quite a few ILC women posting on them.

See my post in the following thread from yesterday - I've included links to several PR- threads

https://community.breastcancer.org/forum/5/topics/873169?page=1#post_5446450

JudyO

Thank you for your responses, I am about 11 years out now but am having tests to determine if I have bone mets. I recently saw a study where they said ILC PR neg is worse than Ductal PR Neg and also worse than triple negs. I am on here to see if the hormone blockers work for PR Neg that have mets. I did chemo and was on Arimidex for 10 years, got off of them about a year ago. Jud

Beesie

Judy, so sorry you are going through this. Hopefully it's a false alarm and not bone mets.

Meow13

mine was er 95% pr 0% on both my ilc and idc tumors.

Gudrun

Judy, I don't know if my stats are of any use for you:

2013, ILC, stage 2A, grade 2, ER 100%/PR-, BMX, no chemo, no rads, only Letrozole that I stopped 5.5 years later.

No recurrence so far.

Best wishes, G

JudyO

Gudrun, interesting that you are HER+....I don't think many ILC are. Judy

Gudrun

Oh sorry Judy, no I'm not. The profile below is my daughter's. I should have mentioned.

Wish you good results.

JudyO

So sorry about your daughter...no one 28 should have to deal with this. Best of luck to both of you

Gudrun

Oh sorry Judi, no I'm not. The profile below is my daughter's. I should have mentioned.

Wish you good results.