IDC with skin involvement

Flo80

Hi friends I am undergoing treatment for IDC with a mass of 5.2 cm. I had little redness and skin thickness on the MRI. Little peel de orange and my oncologist thinks it’s not Ibc and they just took one punch biopsy and it was negative. They still treated me with the same protocol as they treat IBC. My question are there any one with skin involvement and idc

Lexica

Hi, flo - I can't speak from experience, but I know there are some ladies on BCO that have experienced IDC with skin involvement. Hopefully they will chime in soon.

YATCOMW

Flo80.....

I had a mixture of IDC/ILC and it was in my skin. I am 15 years out now. I had read somewhere that having IDC/ILC in your skin did not put you at higher risk----hope this helps.

Jacqueline

Flo80

Thank you so much. Was it only the lymphatic blockage with or without cancer cells. Mine they just took one punch biopsy that came negative. I wanted them to take more. Thank you so much for the post and gives me lot of hope

YATCOMW

I honestly don't have any more specifics-----it was in my pathology report after having my mastectomy along with a lot of other bad stuff;) You did not visually see anything on my breast so I had no idea that I had skin involvement until I got the report after surgery.....so it was a big surprise. I was many years out when I came across the article that said they did not find that having IDC/ILC in your skin had increased risk.......it was a big sigh of relief for sure. Hang in there;)

Jacqueline