Just diagnosed with Metastatic breast ca to my lung

PaulaDurao57

In 2004 on a regular mammogram calcifications were noted in my right breast. I was diagnosed with invasive lobular breast cancer. I had 2 lumpectomies, tested the sentinel node and rec'd radiation therapy. Was then put on Tamoxifen, but had to stop after 2 years because it was messing with my liver. Then in 2009 I had a lump removed from my right armpit. It was a very aggressive and rare type of tumor in my breast accessory tissue. I was told I would need a double mastectomy to be safe! I had immediate reconstruction. I had to undergo chemo again and radiation therapy again. I was then put on Femara for 6 years. In November 2015 I began to have lymphadema in my right arm and a lot of pain...I had testing done and was told the breast cancer had metastasized to my right brachial plexus.I was told it was treatable but not curable!! I could not undergo any more radiation, no surgeon wanted to touch it because of it's location! My only option was chemo for life! During the last 4 years I have been on 9 different chemos, I have severe nerve damage in my right arm and have lost function of my right hand, I have neuropathy in my feet and fingers from chemo...then in July 2019 I started having SOB so oncologist ordered CXR stat and it confirmed that my lung on LEFT SIDE was surrounded by fluid which they had to perform thoracentesis immediately! This was an extremely painful procedure but necessary! They sucked out 1 liter and 1/2!!! A week later the SOB returned so I had to have my lung drained again.They sent off the fluid to be biopsied and it was positive for metastasized from my main source breast cancer to my outer lung, almost like a spider web covering it! I also had a Pleural Drain put in and that gets drained every other day for now and I have been put on another new chemo for me called Ixempra. It has only a 6 month period where it works and then plateaus. I have never heard of this kind of cancer! Does anyone out there have this type or knows of someone who does? I'm scared they are running out of options fo me...I STILL HAVE A LOT OF LIVING TO DO!!!

sbelizabeth

PaulaDurao57, I have no words of wisdom for you, but I'm sending gentle hugs over the internet. I'm sorry you're enduring this.

candy-678

I don't have lung mets. But here is the link to a Thread on lung mets that is currently active. Hope this helps.

https://community.breastcancer.org/forum/8/topics/...

romashka

Wishing you calm strength.

romashka

Wishing you calm strength.

ramona131313

Hi Paula,

You don't say if the cancer is ER+/PR+ or HER+ or triple negative. Depending on the type, you might want to check out this link to a new immunotherapy drug being tested: https://community.breastcancer.org/forum/8/topics/872637. I can't imagine all you've been through. I have just received my second diagnosis of BC after seven years. The first time I had a MX on the right side, now it looks like it will be the same thing on the left. I am having issues with SOB but no fluid or anything they can put their finger on yet. However, I am having a cardiac work-up because I feel it might be pulmonary hypertension that is in the early stages and I want to find out before I go under for a long surgery. Hugs-

KBeee

I am so sorry that you are deaing with this. Hoping the chemo works for much longer than they estimate, and that some better treatments are on teh horizon.