TNBC Regional Axillary Recurrence - advice/experiences/input

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TNBC_77
TNBC_77 Member Posts: 12

Hello all,

Just been diagnosed with a regional recurrence in ipsilateral axillary nodes after lumpectomy, mastectomy, chemo. Found it myself due to pain. 2 cm lump in armpit.

The good news is a CT scan showed no additional spread in visceral organs. Did you also get a PET/Bone scan and/or brain scan?

I consider myself lucky to not (hopefully) have spread further and from my understanding it is still curable if still a little negative in prognostic value and outlook. Quite unusual for it to be 'just' regional - is that true?

Would love to connect with anyone with regional recurrence, what chemo (if any) did you get, did you have a lot of issues with lymphedema after removing all lymph nodes in axilla?

I have surgery next week for axillary clearance.

Thanks

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