I'm livin' the dream: just hit LUCKY 13!

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sugarplum
sugarplum Member Posts: 318
edited June 2019 in Stage III Breast Cancer

Yes, here I am again, hoping to entertain you with yet another of my cheesy annual posts. In the past year I've added a new battle scar to my laundry list which began in 2006: bilateral mastectomies, port placement, oophorectomy, right then left hip replacements, and last August a defibrillator implant. However, I remain profoundly grateful that I've lived long enough to become the bionic woman that I am today!

One happy coincidence this month was being interviewed by Breast Friends for their April 17th radio episode (link is below if you want to check it out!)

https://www.voiceamerica.com/episode/114479/the-importance-of-support-in-overcoming-cancer

It contains among other things a shout-out to my wonderful peeps here at BC.org!

Hugs & hope to all - Julie

Comments

  • lkc
    lkc Member Posts: 1,203
    edited April 2019

    Congratulations Julie! Isn't it wonderful, the gift of getting older?

  • Lexica
    Lexica Member Posts: 259
    edited April 2019

    Congrats!!! And thank you for coming back every year and posting!

  • mpv459
    mpv459 Member Posts: 114
    edited April 2019

    Sugarplum: Your story gives such hope.. and that is in short supply for me right now.. Wishing you the very best and many happy years. :)

  • LeesaD
    LeesaD Member Posts: 383
    edited April 2019
    Thank You so much for sharing Julie!!! Please keep coming back with updates!!!
  • hopefour
    hopefour Member Posts: 459
    edited April 2019

    Thank you thank you for growing older!!! Its encouragement for us all!! If I remember right you are still on a Als?? Congrats on doing so well!!


  • TectonicShift
    TectonicShift Member Posts: 752
    edited July 2020
  • sugarplum
    sugarplum Member Posts: 318
    edited April 2019

    Thanks all! Hope, I am indeed still on Arimidex although it was quite a search to find an onc who would continue my prescription for me. Tec, Adriamycin is thought to be very likely the cause of my cardiomyopathy. I was warned before beginning treatment that there could be dire consequences down the road - but who has time to worry about that when you're fighting for your life?!

    I appreciate all of you continuing to grow old with me...Julie


  • Claire_in_Seattle
    Claire_in_Seattle Member Posts: 4,570
    edited April 2019

    I'll wave to you from my bicycle this July when on my way to Portland. Congrats on lucky 13!! 

    After 15+ years of turmoil which also included a career change, a cross-country move, and a divorce, I am finally in a place where I can fully appreciate my blessings and enjoy life. All my plans have worked out, other than I would love to meet someone. I also have enough income to travel, and I am in the process of upgrading my apartment to be the place I always wanted. Not a major revision, but the touches that make the difference.

    Years 10-13 should be fabulous! - Claire 

  • poisedandpink
    poisedandpink Member Posts: 66
    edited April 2019

    Congrats!! Thank you for coming back to continue to share your story. If gives those like me still somewhat new to the journey so much hope!

  • LoveFromPhilly
    LoveFromPhilly Member Posts: 1,308
    edited April 2019

    hi friends!

    Congratulations on all your achievements and living life without letting dang cancer take over!

    Question for the crew: someone I know was just diagnosed stage 3 hormone + with lymph nodes lighting up. They told me they are only being prescribed Arimidex and not doing any chemo, surgery, or rads. Is this the new normal in terms of treatment? I am happy for her and also surprised to here that there isn’t more being done.

    Thank you so much for allowing me to come visit your threaded!

    Philly

  • Fritzmylove
    Fritzmylove Member Posts: 330
    edited April 2019

    IChangedMyName, that doesn't sound like the standard protocol for stage 3. Typically us stage 3ers get the kitchen sink of treatment. Chemo, surgery, rads, and hormone treatment if applicable.

  • LoveFromPhilly
    LoveFromPhilly Member Posts: 1,308
    edited May 2019

    thanks Fritz...yeah I thought that it sounded a bit under aggressive for her diagnosis.

    I’m wondering if she maybe made some negotiations with her MO about treatment that she is comfortable accepting...I know how scary it is to face

  • Ausykaren
    Ausykaren Member Posts: 68
    edited May 2019

    Hi Julie,

    Howare you. I’m feeling sad. A lady I went through chemo with has passed away. She was Stage 3 inflammatory breast cancer. Certainly sent my anxiety up a notch. So sad.

    Hugs to you

    Karen


  • karen1956
    karen1956 Member Posts: 6,503
    edited May 2019

    Julie - I marked 13 years in February!!! Happy to be growing older...and with that comes a laundry list of Dx, but it beats the alternative

    Ichanged - I don't know what current protocol is, but when I was Dx in 2006, bilat, chemo, rads, ooph, AIs - but I know that treatment is more individualized

    Wishing everyone a great week-end.

  • Misstic
    Misstic Member Posts: 115
    edited May 2019

    It is such a thing to see a stage IIIC fellow achieve 13 years survival. Thank you!

  • libby2002
    libby2002 Member Posts: 41
    edited May 2019

    Julie- have you come off the hormonal treatments or are you still on them at this point?

  • sugarplum
    sugarplum Member Posts: 318
    edited May 2019

    Hi libby - yes, I've been on Arimidex for the past 12 + years, although I had to go through 3 oncologists before I could find one to renew my prescription after the first 10. Have to watch my bone density as I was osteopenic even before my BC diagnosis, but other than that it's a non-issue (although I have seen my cholesterol level creeping up over the years - almost to 200 now).

    The cardiologist doesn't seem to think the Arimidex is to blame for my current heart issues - he thinks Adriamycin is the likely culprit. Oh well - life is just a series of trade-offs, right?

    Best to all - Julie

  • YATCOMW
    YATCOMW Member Posts: 664
    edited May 2019

    Simply awesome......the years just keep adding up!!!!

    Congratulations.......I love it.


    Jacqueline

  • NancyD
    NancyD Member Posts: 3,562
    edited May 2019

    Congratulations, Julie!!!!

  • victoriasecret
    victoriasecret Member Posts: 333
    edited June 2019

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