Sleep

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Via
Via Member Posts: 55

Has anyone else sleep habits have changed after starting hormones therapy? I go to bed sleep about 3 hours and then am up! I don't get it! Before all this I had a hard time falling at sleep but once I was at sleep I could sleep 10 without waking up. Now all have change and am wondering if am the only on on this boat?


Via

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  • Rah2464
    Rah2464 Member Posts: 1,647
    edited April 2019

    Via I think this is very common. I take my Tamoxifen at night, hoping the sleepiness will help me ensure I get about 4 hours in before I wake up the first time for the night. I am usually up 3 - 4 times. Some nights I do not fall back to sleep easily upon waking. No rhyme or reason that I can find.

  • Veeder14
    Veeder14 Member Posts: 880
    edited April 2019

    I never had trouble sleeping even through menopause but this Tamoxifen keeps me awake nightly. I’m taking it earlier in the day but it doesn’t help much. I exercise lots daily too. Don’t want to take sleeping pills. Ugh, 5 years of this it’s hard to imagine. News article after news article indicates that sleep deprivation is harmful to our health.

  • CBK
    CBK Member Posts: 611
    edited April 2019

    I think the question should be does ANYONE sleep well on these meds? And please tell me your secret??

    My problem is a break out in a hot flash and it wakes me up 🥵! Then I’m freezing and I can’t get warm ! I need to go back to acupuncture; helps me with sleep and flashes!

    When I force myself to stay up later ... like until midnight, I usually get a much better nights sleep.

    Everyone’s different but melatonin seems to work well for me!


  • Dani444
    Dani444 Member Posts: 522
    edited April 2019

    I am the same way, no sleep on this tamoxifen. I will either wake several times a night, with or without a hot flash, or I will only sleep about 4 hours and that is it. I tried switching from night time to taking it earlier in the day, but as time goes on it doesn't seem to make a difference. I am with you Veeder, 5 years of this really seems hard to imagine.

  • VL22
    VL22 Member Posts: 851
    edited April 2019

    I stopped taking tamoxifen because ofsevere joint pain back in November. I feel so much better, but it took months.

    I still don’t sleep however. I think if you had chemo and went into menopause and started your hot flashes and sleeping issues then, even if you stop tamoxifen it can still be an issue.

    My hot flashes aren’t as severe as when I was in tamoxifen, but I still get them throughout the day and night and I never sleep more than three hours at a stretch. I hate it.

  • ElaineTherese
    ElaineTherese Member Posts: 3,328
    edited April 2019

    Hi!

    I used to have awful insomnia, and the Aromasin didn't help. While I was doing chemo, my oncologist prescribed me a number of meds that helped me sleep, especially when I'd had steroids. But, after chemo, she cut me off, which turned out to be a blessing in disguise. I am now able to sleep without Avitan, Xanax, or Ambien. I now rely on melatonin, and it really does the trick. Once I'm asleep, I'm asleep.

  • kec1972
    kec1972 Member Posts: 269
    edited May 2019

    A friend of mine takes Magna Calm magnesium before bed and says it has helped her sleep tremendously

  • FarAwayToo
    FarAwayToo Member Posts: 255
    edited May 2019

    Being able to fall asleep fast and stay asleep used to be my superpower. I had a rough several months after starting the meds, but now I'm back to being a good sleeper. My hot flashes have subsided a lot since the first time after I started on letrozole, and I think that helped a lot. They were awful when I first started, now I'm down to 5-8 a day and maybe 1-2 a night.

    The only problem is sometimes I have a harder time falling asleep than before (I may need 30-40 min rather than 5-10). I sometimes take melatonin 15-20 minutes before I want to be asleep (3-5 mg), and it helps a lot. The most important thing is to be ready and in bed by the time melatonin starts to act. I was once woken up right after melatonin hit me, and I couldn't fall asleep for hours!

    Also made my bedroom very dark with blackout curtains and no lights like clock display. I noticed that even hallway light that seeps under the door presents a problem. When I get up to go to the bathroom (a lot more often than before) I don't turn the light on - this helps me fall back asleep right away.

  • Via
    Via Member Posts: 55
    edited May 2019

    your right! Light from night light even are a problem. And am also going to the bathroom more than before!

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