Ringworm drug for dogs (Fenbendazole) might also cure cancer

santabarbarian

As far as I know (for the chemo drugs I took) the infused drugs are gone from your system in a matter of ~4-5 hours. They process out. There can be some sluggishness to get rid of every trace, but the cancer-killing level of the drugs drops VERY rapidly. I asked my MO as I was curious about that.

Frisky

Snooky I read it on his blog...I feel bad for him....doesn't he know what they do to people that offer alternatives? There are going to eat him alive! Someone should tell him to read up...on that dentist in Texas, I forgot his name...

Frisky

Santa, that’s true with the weekly infusions, but a monthly infusion such as Doxil, start working one week to ten day after the infusion and doesn’t stop till a week prior to the next one, that’s implying that it’s working....

Frisky

okay folks, I got a call from my Mo, which it's never good...there's some progression in the bones and the liver, enough to change TX and do Navelbine...she said it's a quick weekly shot in the arm...

so there you have FZ has not delivered yet! HOWEVER, I have never felt better than this..l have no pains in any of the areas mentioned, so at least I have that going for me...

I have to say also, that I'm not totally surprised for some reason...all I can hope for, right now, is that these medications don’t kill me before the cancer does...

NicoleRod

Frisky so sorry to hear this... UGHHH CANCER SUCKS!!!!!

So you were on FZ for 3 months correct? What else were you taking please list.

Frisky

Nicole, I've been on FZ since May, I've been taking the curcumin and vitamin E, the metformin and atoravastin till recently when I switched to the quercetain.
I will start taking the doxycycline now with the vitamin C....since I'm no longer on Doxil.

Been drinking green tea and too many supplements to mention...I have not been doing the mushrooms lately, but I had liver progression when I was doing them.

The truth is that ILC sneaks up on you and I've had it relatively good for the past 5 years....they don't really know how to treat ILC, although is quite different...I read somewhere, the result of a symposium they had, that it doesn't respond to chemo at all...just hormonals....

But as long as I can take care of myself and I'm not in pain, I'll be fine...having to depend on the kindness of strangers is what will kill me...for sure! For sure!

santabarbarian

Frisky I send you a big hug. That is disappointing! Good your next plan is already in place.

BevJen

Frisky,

Sorry to hear this. I hope that Navelbine does its thing and kicks everything back.

Frisky

Thanks Santa, I don't why, I'm not surprised...I guess it stems from the total lack of trust I have in these conventional therapies...I'm glad when I hear people are benefiting....but deep down I know it has little to do with the medications and a lot to do with what we don't know yet about cancer...

Thanks BevJen, will give navelbine a try...it’s easier than Doxil , my mo reassured me...she suggested Taxol, but not ready for that one...

santabarbarian

High dose C IV is a very good thing to add. No risk, a piece of cake, zero SEs. If anything, you feel better/hydrated. I recently heard they can be prescribed/ covered now? Ask!

I take ALA and Artemesinin suspension, in the am, then get Hyperbaric Oxygen, then go for my High dose C infusion. This magnifies the pro oxidant effect of the C.

When I got my C IVs during treatment I always felt a lot of activity in my breast. Tingles, which I would visualize were the cancer cells sizzling in the bath of C.

Frisky

Santa, the functional mos have all disappeared from Manhattan, dead or persecuted...I have to travel out of town for those type treatments..will research for something nearby...thank you for that list!

NicoleRod

Frisky...I personally would not have taken the Vitamin E...I understand that Joe did but he did not have Hormonal Driven Cancer. Others here may disagree but unless they also have Specifically Stage 4 Hormonal Driven Cancer ....I would disagree with them. Just my opinion you have to do what is right for you.

I didn't know that you had progression with mushrooms I am at this very moment looking for just Turkey Tail because I heard it is good with Xeloda..but again you were on Xeloda and probably taking that. I have a mushroom complex with a bunch of different mushrooms but some of those are anti oxidants and will defeat the purpose of chemo. Now after hearing what you said I am thinking I should forgo the mushroom supplement altogether...

santabarbarian

nicole, fwiw

http://www.lifeovercancer.com/ask_drblock/xeloda.htm

NicoleRod

Santa thanks for that but they do not mention if the Glutathione was given via IV ....as you know anti oxidants given via IV vs. orally work totally different in the body with relation to chemo...IV C is prime example of that.

Frisky

Nicole, you have IDC, we are all different, what didn't work for me might work for you....keep taking the mushrooms...I think that it all works together, like a good minestrone soup...

Remember, all the information out there is partial and therefore pretty useless. it's like a blind man touching the trunk or the tail of an elephant and thinking that's what an elephant is all about. No one has real and complete knowledge, all are wading in the dark...

As long as I'm pain free, can think, and take care of myself, I'll be fine...that's why I have to take the antioxidants and anti inflammatories etc etc...the statistics are very clear about this disease and 2% survives by playing by the conventional rules...

The moment we step outside the box, anything goes, and figuring out all the angles is like playing with a rubicks cube, maybe we will figure out the combination, maybe we won't before the clock runs out...but it's a lot more fun trying, than sitting there and dying of sepsis or an heart attack! And we have many people on this board that are NED because they are playing outside the box. So I would follow their successful minestrone soup recipes, and last I checked, they were making delicious mushrooms soup!

So on we go...

NicoleRod

Frisk...I do have IDC but my breast cancer had Lobular features.... Not sure how much into play that comes..but it said that.

I agree about the 2% with just conventional...I am just speaking specifically to, too many or specific anti oxidants...I mean why not try and drop the E....see if next scan things change?

Frisky

I could easily do that, the problem is that I don't believe the conclusion of the study....they have been going back and forth on this for the past decades...it all depends on who's paying for the study and what they want to prove...I believe NONE are unbiased, simply because no one is going to spend money to prove that their stuff doesn't work...and researchers can't afford to be objective, they have alimony and child support to pay....

Most patients don't take supplements, yet, we all know how it goes....but I can easily do without the E since I take so many other things...we'll see if it makes any difference...

ShetlandPony

I was just reading the last few pages here, actually to catch up on Frisky’s news since I saw she was off Doxil. I wanted to point out that chemo can indeed work for ILC. Taxol and Xeloda both gave me long periods of NEAD. Frisky, I’m sorry to hear you had to switch so soon. Glad you are generally feeling good.

santabarbarian

Hmm, I have never heard that IV Glutathione is ever a pro oxidant.

I believe it is still an anti oxidant given IV because it is not given at a high dose. I did have a few Glutathione IVs, which were more like large shots and dripped in very fast (20 mins?). The IVC takes almost 3 hours to drip. Granted they use a small needle. Anyway I do not believe IV glutathione would be a pro-oxidant.

edit: this says it's antioxidant when given by IV

https://gundrymd.com/glutathione-iv-therapy/

Frisky

Shetland I was on Doxil for six months which is more than average...but for all we know it never worked, since I never had a scan in between, but your success with X is reassuring, I hope it works well for you..

NicoleRod

Santa..I am getting my IV C infusion (first one) next thursday..and they said it will only take an hour and half...the first dose is low though...not the 50grams...I think its like 12 or 25...but still 3 hours?

santabarbarian

Thats how long it takes at my place. Maybe 2.5 hours or 2:45.... Let me know what your experience is like.

ShetlandPony

It has already been six months? I wish time would not pass so quickly. I am on Doxil now and we will scan at the end of cycle two.

Frisky

Don't you think it might be too soon to see if it works? I would give it at least three months...are your TM reliable?

Husband11

Frisky, I am sorry to hear the results of your scans. It's hard to evaluate the influence of your supplements. They may have helped, but just not enough. I don't confidently buy into the Vitamin E is harmful for hormone driven cancers. Perhaps plain jane alpha tocopherol alone is problematic, I wouldn't recommend that at all as its so unnatural, but there is lots of evidence that full spectrum vitamin E, tocotrienols induces apoptosis of HR + cancers, at least in the test tube and in lab animals.

Frisky

I agree Husband, quality full spectrum especially with Vitamin E and the objective of the study as important as well.

ShetlandPony

That’s the weird thing. In the past my TM was very reliable, and now suddenly it is not. I think in my case a two-month scan is fine because in the past this cancer has responded quickly and dramatically to a new chemo. Also, we need to keep an eye on it because there is a feeling that it may be speeding up. (Sorry to go off-topic, you guys.)

Simone80

Frisky,

Sorry to hear about your progression. I was hoping the feben would have helped keep you stab!e.

Frisky

Thank you Simone, with FZ is a all or nothing situation...but I can't complain. In my five years dealing with MBC this is the first time that I feel normal, good, all the usual problems are no longer there, the fatigue stems mostly from the chemo...I am absurdly optimistic....maybe a bit disassociated perhaps? My biggest issue will be having to go to the hospital every week...I will HATE that more than anything else...that’s my biggest problem as I see it...

Frisky

Shetland nothing is off topic here...you can take your shoes off and let your hair down...no one is going to get offended and call the mods on you.

I hope the speeding up is not happening and that Doxil puts on the brakes if it is...I guess check sooner, but be careful not to move on too quickly if there's uncertainty.

All together, even with the scarring—which is no longer there—Doxil was fairly easy....I will always stick to JFL for my second opinion....