Diagnosed DCIS

BB3312

Nervous bc so many posts here don’t have the highly positive outcome given in the literature.

Diagnosed with a tiny bit of DCIS inside a tiny papilloma lump of .3 cm.

A little concerned also bc radiologist took it “all out” with core needle and I’m scared she spread it when it was contained in the papilloma. This was after the initial biopsy found only ADH.

After reading, unsure if I should consult oncologist before surgery, have pathology reviewed at a teaching hospital or cancer center, etc etc. my mind is going in circles. I’m sorry and admire you all greatly!

LAstar

Getting a second opinion on the pathology is never a bad idea. If you have intermediate- to high-grade DCIS, a MRI may be useful.

It's definitely mind-going-in-circles time! I went into information-gathering mode which kept me busy and focused (and then I had a good meltdown ). Be kind to yourself - it's a lot to take in and make decisions on. Give yourself some breaks with exercise, comedy, fun children, and other distractions. Even 5 minutes of not thinking about it feels like a vacation. Best wishes!

BB3312

thank you. An mri was done before the second biopsy. The Dcis is in a papilloma and intermediate.

They are telling me that is all good. But I am a worrier...

TaraLeeOm

I was diagnosed with a small amount of DCIS a year ago. Since the nipple was involved and had to be removed anyway, I chose to go with a mastectomy. Everything went well, my oncologist gave me a clean slate and said I could go back to yearly mammograms and have a breast surgeon examine the mastectomy once a year as well. He also said I no longer needed to see him and I needed no further treatment.

I moved to another state, so I went to a breast surgeon here. This doctor started telling me I should be on estrogen inhibitors because I am at risk for breast cancer, I need to get tested for the BRCA gene, there's a good chance I have it. She gave me a sonogram in her office, then set me up with 4 appointments — gene testing, mammogram, office visit to discuss results of gene test, office visit to discuss results of mri and Mammo. (She also gave me a script for an outside MRI.). I think she's in it for the money. I asked if I could have the gene testing (which is drawing blood) and the mammo during the same visit and i was told No. I'm thinking if I go on hormone inhibitors, that's probably several times a year of office visits.

She also said I had high grade DCIS. I said, no, I had intermediate grade. She said, It wasn’t low grade, so it’s high grade.

I am finding another doctor