Just diagnosed yesterday

Serenelife

Hi everyone,

I've been lurking around the "waiting for biopsy results" but didn't join till I got the news yesterday. Membership in another club I didn't ask to join. So far what I know is it is IDC that he said started as DCIS. It's tiny 4x3x3mm. I just got the hormone receptor results. P-, E+, HER2 +2 and being sent for FISH testing. I have an appt with a new surgeon at the Women's hospital in town on Tuesday morning. They offered me an appt this afternoon but I need more time to process this. Ki 67 is 40%. I would love to hear from those ahead of me on this journey.

Meow13

Most oncologists don't care about ki 67, otherwise sounds like you caught this really early. I was also er+ and pr- her2 +2, fish came back her2 negative. I had mastectomy and DIEP reconstruction haven't seen it in 7 years.

I had 2, 1cm tumors, one idc and one lobular.

Serenelife

Meow13 that is so encouraging! I'm praying for a negative result also. I almost didn't catch this early. I was suffering from deep depression due to severe back issues and I had quit having mammograms because I told my husband I wasn't going to treat a cancer if I got it. I had tried many different antidepressants but because of the severe nerve damage I couldn't take them. Fortunately my pain management doctor wouldn't give up. I tried a new one and it had me feeling so good I told my primary care doctor okay I'll go ahead and do my mammogram. And boom cancer!

Ingerp

You might check out the threads related to your diagnosis and eventual treatment plan (I follow "Triple Positive" and "Weekly Taxol", as well as a bunch of others). There are also new "Starting Chemo/Rads/Having Surgery groups" every month with a lot of wonderful hand-holding. I also recommend you read a bit on the threads that are a few months ahead of you--lots of good information and tips.

edwards750

This website is a godsend. I joined in 2011 when I was DX. Like Meow I’m 7 years out as well. Nowhere else can you talk ala this forum and get a wealth of information and experiences. We are all here for the same DX in various grades and stages and treatments. While BC isn’t a one size, fits all disease we all have the same thing in common - we have BC.

You will be inundated with information once you get DX and it’s overwhelming and hard to comprehend. The ladies who are further in the process than you can help with terminology and the do’s and dont’s of what their personal choices revealed.

You can do this. We are all proof of that.

Keep the faith and keep us posted.

Diane

Anonymous

I love this website. Like Diane I joined in 2011 and immediately stopped feeling less alone and less fearful about the dx when I did. I've also gained so much valuable info I feel like I have a PhD in b.c. treatment/countering side effects/etc. and having all that good, truthful information has made me feel more secure. I think BC.org might be keeping me alive (along with my AI, ha ha).

Serenelife

Ingerp, thanks for the encouragement. I will do as you suggested.

Edwards750, I'm counting on this forum. I wish there had been a forum for when I was diagnosed with my incomplete spinal cord injury. I would have loved to have had someone further in the journey to hold my hand while I went through all that. (and still going through it) at least I have others on this journey.

Claire Inez, I already have my PhD in spinal cord issues. I most definitely was not looking forward to another PhD in anything! But here I am, whether I like it or not.