What to say/ NOT to say to someone diagnosed with a recurrence

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  • Meow13
    Meow13 Member Posts: 4,859
    edited March 2019

    Victim blaming alive and well, sigh.

  • capelang
    capelang Member Posts: 18
    edited May 2019

    I appreciate your post. I've had BC in left breast twice and lymph nodes involved both times. I have Lymphedema and 1 year after radiation, I had Radiation Induced Rib Fracture - 2 rib fractures. I had a tiny cut on my left finger and even though I cleaned and bandaged it, bacteria got in and went up left arm. Since lymphatic system doesn't work properly, infection got behind left chest wall and I ended up in hospital for 4 days wit IV of antibiotics for cellulitis.

    Now, I have a "pleural effusion", fluid between lungs and chest wall. Pulmonologist thinks it could be cancer. PET scan is May 10, 2019

    If you met me, you wouldn't think there's anything wrong with me and I still laugh and joke. Oh, and recently diagnosed with Scleroderma.

    I just recently told my family and friends to quit saying "don't worry " or "take one day at a time". These are the same people that complain about a hang nail or there everyday aches and pains.

    I've had 2 cancers and now maybe a 3rd. Plus, the diagnosis of a rare autoimmune disease. Of course I'm concerned - how could you not be.

    I'd rather hear "I know you are concerned and this must be scary for you". I'm thinking about you .

    Just had to vent!




  • KBeee
    KBeee Member Posts: 5,109
    edited May 2019

    I am sorry you are dealing with this. Praying your PET scan comes back clear. Do keep us posted. Waiting is so very hard, and so very scary.

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