Mom diagnosed with TNBC but we are staying positive

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LifeisGood2019
LifeisGood2019 Member Posts: 4

Hi everyone,

My mom, 58, got diagnosed with TNBC on Feb 6, 2019. On Feb 13, 2019 we did a PET scan and they saw 6-7 tiny lesions on the lungs. The doctor has decided to treat her aggressively because she deserves it. He said he is "young and fit". She has started chemotherapy on Feb 18. She didn't have too many side effects at all, thankfully. Only on day 7, her white blood cell count (WBC) went down to 1600. Normal range is 4000 to 10000. She was hospitalized for 2 days, she got a WBC booster and then her counts became normal again.

Today, March 11, 2019 was her 2nd chemo. She has a total for 4 chemos (next ones on April 1 and April 22). After that, around May 13th, they will do another PET scan to see if the spots on the lungs had any effects. If the chemo made the spots disappear or shrink, that means they were cancerous. If there is no effect on the spots, that means they could be benign or bronchitis or something else that is treatable.

It has been a very difficult period for us, although my mom has been extremely positive and calm. She is a very strong woman like many others here. I am here because I have been having my moments trying to deal with this. I was with my mom for the first chemo and now my sister is with her for the 2nd one. I might go back for the 3rd chemo. I am 8000 miles away from her, which makes it so much harder. My dad has been phenomenal in this process. Very supportive, caring and positive. He is also running around taking care of things like billing and claims and a zillion other errands.

I want to be a part of this community to read from other's experiences, as well as share my mom's story. We are hoping she has a full recovery from this.

Lots of good thoughts to all of you.

Comments

  • santabarbarian
    santabarbarian Member Posts: 3,085
    edited March 2019

    LifeIsGood, you might have more luck connecting with people in the TNBC forum. There are many threads there where TNBC patients post! Another place to post is to look for the "Chemo March 2019" thread in the Chemotherapy forum, if seeking info on side effects and things that can help. Finally there is a forum for family members where YOU can connect with other daughters, sisters, etc.

    I am sorry you are here but glad you found this site. The support and info are stellar.

    A good aspect of TNBC is that it can be very susceptible to chemo-- so I am glad your mom's doctors have gotten that started so quickly!

    Best wishes to you and your Mom.

  • LifeisGood2019
    LifeisGood2019 Member Posts: 4
    edited March 2019

    Than you so much.

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