TNBC Mets to lung & bone

Keller27

Hi everyone,

My mom had stage 1 TNBC with no lymph node involvement in 2014. Almost 5 years later, we just found out this week that she has reoccurrence stage 4 metastatic to bone and lung. Our family is absolutely devastated. She is completely healthy, 56 and has no symptoms. I am only 25 and do not know what I would do without her.

Her oncologist is planning to start her on Tecentriq and abraxane next week. I was wondering if any of you had similar stories with Mets to bone and lung? What your treatments were? Also if any of you have had abraxane and Tecentriq? Any information would be greatly appreciated! Praying for all of you and your families 🙏🏻

flgi

Dear Keller27,

I visit this site regularly on behalf of my mother, who was diagnosed with primary TNBC last June and is currently going through chemo.

I have no practical advice re: what happens at the stage your mum is at, but just wanted to say: I feel for you so much at this time. What a horrible shock for you, your mum and your family.

I’m sure plenty of people on this board will have helpful suggestions re: what you need to be asking the oncologists. The onc we visited in Guy’s Hospital, London UK, said that, if TNBC does come back, there have been recent promising findings with immunotherapy . It might be worth asking about that?

As a fellow daughter of a mum with TNBC, I am rooting for you and thinking of you.

Flora x

Keller27

Thank you so much

jcatalina971

I was tnbc stage 1 in 2015. It came back in 2 years and I was stage 3c. I did chemo and radiation for a second time and about 6 months later it started to grow back again. Anyway last week I found out that I’m stage 4 and my oncologist is wanting to try to get me into a trial in Pittsburgh with abraxane and tecentriq. She tells me that they are having really good results with it for TNBC that has PDL-1 expression. I have a son that is 24. That’s what keeps me going. They are finding more good treatment for tnbc. Prayers for you and your mom. I hope she does well with the treatment and I hope she will be a super responder to it.

LifeisGood2019

Hi everyone,

My mom, 58, got diagnosed with TNBC on Feb 6, 2019. On Feb 13, 2019 we did a PET scan and they saw 6-7 tiny lesions on the lungs. The doctor has decided to treat her aggressively because she deserves it. He said she is "young and fit". She has started chemotherapy on Feb 18. She didn't have too many side effects at all, thankfully. Only on day 7, her white blood cell count (WBC) went down to 1600. Normal range is 4000 to 10000. She was hospitalized for 2 days, she got a WBC booster and then her counts became normal again.

Today, March 11, 2019 was her 2nd chemo. She has a total for 4 chemos (next ones on April 1 and April 22). After that, around May 13th, they will do another PET scan to see if the spots on the lungs had any effect. If the chemo made the spots disappear or shrink, that means they were cancerous. If there is no effect on the spots, that means they could be benign or bronchitis or something else that is treatable.

It has been a very difficult period for us, although my mom has been extremely positive and calm. She is a very strong woman like many others here. I am here because I have been having my moments trying to deal with this. I was with my mom for the first chemo and now my sister is with her for the 2nd one. I might go back for the 3rd chemo. I am 8000 miles away from her, which makes it so much harder. My dad has been phenomenal in this process. Very supportive, caring and positive. He is also running around taking care of things like billing and claims and a zillion other errands.

I want to be a part of this community to read from other's experiences, as well as share my mom's story. We are hoping she has a full recovery from this.

Lots of good thoughts to all of you.