Stage 4 TNBC Mets to bone & lung. abraxane & Tecentriq

Keller27

Hi everyone,

My mom had stage 1 TNBC with no lymph node involvement in 2014. Almost 5 years later, we just found out this week that she has reoccurrence stage 4 metastatic to bone and lung. Our family is absolutely devastated. She is completely healthy, 56 and has no symptoms. I am only 25 and do not know what I would do without her.

Her oncologist is planning to start her on Tecentriq and abraxane next week. I was wondering if any of you had similar stories with Mets to bone and lung? What your treatments were? Also if any of you have had abraxane and Tecentriq? Any information would be greatly appreciated! Praying for all of you and your families 🙏🏻

Flynn

I’m very sorry to read this, Keller27. I’m not familiar with stage 4 meds but you might have better luck in the stage 4 area. I recall that there’s a TN thread in there. I hope that your mom finds a treatment that works well and that you have many years together.

Amscott

Hi Keller,

I was diagnosed stage 3 Tripple Negative Breast Cancer in January of 2017. After Chemo, Surgery, radiation and more oral chemo, I had follow up screens that showed it matastisized to my lungs, bones, lymph nodes, and liver. July 3018 I was diagnosed stage 4. My Dr. Started me on Tecentriq and Abraxane two weeks ago as a last resort after trying multiple othe drug combinations. The insurance company said they approved the use of the drug and sent an approval letter. I only received one treatmen and they refuse to pay. It is an 11,000 dollar treatment. We started the appeal process but have not heard back yet.

Any way I can not tell you much about the side effects and such since I only had one treatment but please keep in mind the insurance could refuse to cover the drug. Good Luck—- Amscot

Deedi

I was recently diagnosed with metastatic tripple negative in mediastinal nodes. I am 50 years old. I am current on the Abraxane and tecentrique treatment. I started at the end of January 2019. I did have to push my insurance to cover this since it was so new. So far treatment has went well. I lost my hair after a couple of treatments. I have done very well with little side afffects. I am a little sick the day of treatment but sleep when I get home and I'm fine the next day. I do have some joint pain. I am fighting this everyway I can. I juice a couple of times a day(mostly organic), eat healthy with little to no sugar are. I bought a trampolines and jumps a couple of times per day. I bought an in fared sauna a which I sit for 20minutes per day. I take extremely hot baths, lemon water every morning, along with other suppliments. I get my first scans mid April. I am hoping the treatment works well for your mother

Keller27

thank you! She is doing wel so far. She is on 3 weeks of abraxane with 1 week off and tecentriq every other week. Is this the same regimen as you? Her side effects are ok. She definitely is fatigued and she has a rash from the tecentriq. Otherwise she is ok. A lot of her hair has come out and it’s very thin but still there. She is thinking about getting a wig. She also gets an xgiva shot to strengthen her bones. Do you get that as well? I have her on an extremely low carb diet. Cancer cells are poorly differentiated cells with no mitrochondria so the only way they can use energy is through ATP glucose transporters which are driven by sugar. By eliminating sugars, these cells do not have the means to function or continue to live. How does the infrared sauna and hot baths help? I am interested in that. i have also heard drinking baking soda with water to lower the pH in your body can be helpful as cancer cells require an acidic environment. My mom had a bump on the skin of her breast which has already dramatically decreased in size after her past 3 treatments. We are happy and hope it is working the same elsewhere inside her body! I believe your scans are around this time (mid April) and I’m praying for good news! Please let me know the results when you find out.