Waiting for scan results - ugh!

nowaldron

Hi Everyone,

I hope all are doing well on this cold and rainy day in Boston! This post is a little self-serving as I am getting the results of my most recent scans tomorrow. I've been really busy the past week so I haven't had much time to dwell on it. I just "celebrated" my three year anniversary of having been diagnosed. I am currently still on Herceptin, Perjeta and Femara and have not had any recurrence since initial diagnosis (Stage IV de novo with mets). 

I don't post much but I do appreciate reading about everyone's ups and downs with this illness. My two sisters (both older) always just say "oh, you'll be fine," so I can't really talk to them too much about it. Aside from being tired all the time and now have a lingering cough, my life is pretty much the same; the "new normal" as they say (still working FT, take care of the house and pets, etc). The hardest part is living scan-to-scan. I have been stable for more than two years though my onc says I'll never be NED because I have "bony disease." 

Oh well, thanks for listening...er, reading :-) I hope everyone has a great evening and continued good health. 

Sending hugs from a very wet Boston. 

Nancy

MJHJAN1014

Nowaldron-Yes, MBC sure is a roller coaster ride. Scanxiety stinks and I wish we all could have "forget pills" while we await all of our stupid test results. Bone mets only is a great place(relatively) to be. I wish for you years of joyous living. it's maddening to know that we will always be looking back over our shoulders to see what lurks. It's hard to respond to the "Oh, you'll be fine" statement. it's almost dismissive, and we really don't know if we will be fine and worrying about it in the present is draining. What I like to say to friends and family in crisis is : What's the hardest thing right now? and then reflectively listen. It's a tool that has taken me years to acquire. Not everyone can do that, and I guess we should learn to forgive them. But, sometimes, I confess, i just roll my eyes and say "what a dolt" ! Best, MJH