How fast did your tumor grow?

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pesky904
pesky904 Member Posts: 402

Apologies if this topic has been discussed before. I was diagnosed with stage III TNBC in June 2017. I found a pea-sized lump in late January and ignored it, thinking it was a cyst. It continued to grow and I had just moved to a new state so I waited longer than I normally would to have it checked out, but by the time I was diagnosed in mid-June, it was 6cm.

Just curious how fast your triple negative tumor grew? How big was it when you found it and how big was it when you were diagnosed?

Comments

  • Flynn
    Flynn Member Posts: 307
    edited January 2019

    Good question. I had a clear mammogram 6 months before I noticed that one of my breasts looked different. I think because my sister was diagnosed with bc 3 years before me, my OB saw me immediately and I was diagnosed within 2 weeks. My initial MRI put my tumor around 8cm. Another MRI shortly after came in a little smaller but it seems to have been in the 6-8cm range. I guess it’s possible that the mammogram missed it early on but I think it grew really fast.

  • Vslush
    Vslush Member Posts: 183
    edited January 2019

    I had a palpable lump that I ignored for almost a year. It just appeared one day and never seemed to change until I finally had it checked. It was 2.8 and 3mm on mammo and US, respectively. I was surprised to find out it was TN, as it didn't seem to change the whole time it was there.

    Vickki

  • pesky904
    pesky904 Member Posts: 402
    edited January 2019

    Interesting. From what I've seen and heard, some TN tumors grow really fast over the course of a few months and some grow initially to a few centimeters and then kind of stay the same.

    Mine seemed to grow from pea sized to 6cm over 4 months, but then remained pretty stable as it was about 6cm when I really started paying attention to it in mid-May and was still about 6cm when I started chemo at the end of July. So after an initial period of extremely, extremely rapid growth, it slowed down or stopped growing.

  • Parrynd1
    Parrynd1 Member Posts: 408
    edited January 2019

    I don’t know the exact size but in 3 months I went from stage 0 to 3. The first tumor was 4.5cm at that point and there was a second .7cm tumor that developed within a 30-45 day window

  • moth
    moth Member Posts: 4,800
    edited January 2019

    My 1.7 cm tumor was removed almost exactly 6 mos after a clear mammogram.

    I first felt something around 3 months,waited a month to see if it was hormonal and would go away, saw doctor in month 4, had diagnostic mammo and ultrasound and a biopsy in month 5, surgery month 6. I don't know if it increased much between the 3 & 6 months. It seemed to me to go from nothing to a palpable almond shaped thing right away and then it was sort of the same until the surgery.

  • pesky904
    pesky904 Member Posts: 402
    edited January 2019

    It’s really interesting. It seems like all triple negative tumors grow fast, but some grow to 1-3 centimeters and others grow to 6-10 centimeters over the course of just a few months. I wonder what makes some of them grow so enormously big.

  • santabarbarian
    santabarbarian Member Posts: 3,085
    edited January 2019

    I found my lump when I got out of the bath tub and glimpsed myself in the bathroom mirror, as I was grabbing a towel.... my breast had a pink spot on it the size of a silver dollar. It was warm and I thought it might be a breast infection. Poking the red area I found the lump. I took my temp and had a slight fever... felt exactly like a plugged duct to me but not painful, just inflamed. Hmmmm, but I am 56! And my baby is 21! However, Dr Google confirmed that women in menopause DO sometimes get breast infections.

    Went to OB the next day; had mammogram, US & biopsy that same day. By Friday, diagnosed IDC and the following week, FISH test came back: TNBC. Tumor measured 3.8 cm at largest dimension per mammo. Within about 3 more weeks I'd also had a MRI and a scan, and by one month post mammo, I began chemo. So it was quick. But when my surgeon and I had our post op meeting she mentioned that the tumor was 5 cm in largest dimension, per early MRI (first I'd heard of that!). So either it grew another cm in under a month or one of the measurements was off.

    I could feel it, and it seemed to get bigger, but I thought it could be my imagination. Within a few days the pink spot and the heat went away. I am so grateful for the brief but distinct inflammatory response I had. A, I noticed it. B, I thought it was infected, and I needed to jump on it fast, before it really began to hurt.

  • Parrynd1
    Parrynd1 Member Posts: 408
    edited January 2019

    I have also heard that after a tumor reaches a certain size, varies person to person, the growth can explode. It can start growing slowly but after the tipping point it’s like a wild fire. Not sure how this applies to BC specifically so take it with a grain of salt.

  • TuesdayStar
    TuesdayStar Member Posts: 9
    edited January 2019

    I found a lump the size of a kidney bean in early October. By the time I started to get panicky that I hadn't gone to the doctor yet it was the end of November and felt the size of an egg. After a couple weeks when I got my mammo/ultra sound it felt bigger (and was discovered to be 3 lumps, one small one and 2 large ones that may or may not be connected). By the time I got biopsy done (1/10/19) and results (1/16/19) and got an appointment with a cancer surgeon and doctor (1/24/19) they told me it was too big to operate and I need adjuvant chemotherapy.

  • santabarbarian
    santabarbarian Member Posts: 3,085
    edited January 2019

    TuesdayStar, I am glad you found your way here. I recently was treated with chemo prior to surgery. I would have had to have had a mastectomy if I did not do chemo first. My treatment worked incredibly well and my tumor melted. These fast growing cancers can be fast-dying too. Have courage -- and know chemo can defeat TNBC.

  • TuesdayStar
    TuesdayStar Member Posts: 9
    edited January 2019
  • kber
    kber Member Posts: 394
    edited February 2019

    Grew super fast. Also shrunk super fast with chemo. So here's that.

  • pesky904
    pesky904 Member Posts: 402
    edited February 2019

    mine doubled in size on Taxol. Shrunk pretty fast on AC

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