Scanxiety starting....3 yr post dx mammo coming up in 4 weeks

Kkubsky

In about 4 weeks it will be time for my mammo/us.....3 yrs post dx. And the scanxiety is beginning. Ugh. This is when I start getting very active in all sorts of DCIS groups and start reading and rereading articles on the internet. Start obsessing over recurrence rates, question my treatment decisions, wondering if my drs really knew what they were doing. And every ache and pain becomes a red alert for me. I get myself all worked up and convinced that the news will be bad..after all I had grade 3, hormone negative etc etc DCIS....not grade 1, hormone positive, with 2+ mm margins....sigh. Does it ever stop!!!??? Sometimes I think I need to get off of all the FB DCIS groups. They can make me really question myself and cause worry. But they can also be supportive and I like to give those newly diagnosed a measure of relief that things do get better. I know when I was first diagnosed it was so important to see people doing well several years out. Now I look for longer term recurrence free statistics. I really envy those that can seem to put this behind them and live without the craziness in their head. Maybe it is time to get off some of the groups (not this one). What do some of you other several year out ladies do?

Lindabirdd

Hi! I see we are still on almost the exact timeline. I have my 3 yr mammo coming up on Feb 9. I joined the DCIS Facebook group again and do feel like I can share my experience butit definitely keeps it on my mind. I wish I could have ultrasound too but my oncologist doesn't seem to think I'm high risk enough. I just keep telling myself it was stage 0 and it was removed and I had radiation so I shouldn’t over exaggerate my recurrence risk! What other kind of follow up are you doing? I'm still seeing my oncologist every 6 months. I search for more and new info on DCIS too. It’s frustrating though cause so much is geared to hormone positive.