Has anyone declined chemo and/or radiation?

Options
Pooki
Pooki Member Posts: 27

I'm hoping to hear from people who have skipped radiation and/or chemo and how their journey on this crazy ride has been. I've declined chemo (had a Mammaprint on both the tumor and a positive 20mm LN filled w/ cancer that came back low risk) and I just had a planning session for radiation treatment done yesterday. I've been on the fence about radiation, but felt like I should do it since I am not doing chemo and will just be taking tamoxifen.

I was supposed to have a patient radiation education session yesterday, too, but they said that they would just answer any questions that I had while in treatment. I have pushed back and asked for an appointment to go over my questions and concerns before I go for my first treatment. I'm going to an NCI, but this radiation doctor doesn't seem to want to take the time and address my questions.

Anyway, I was diagnosed at age 40, IDC, 2.5cm tumor, grade 2 (one path review said grade 2, another said grade 1) ER+ (100%)/PR+ (100%)/HER2-, 2/20 positive lymph nodes, had a lumpectomy and axillary lymph node dissection. My final pathology showed extranodal extension 2.5mm and that LVI was present in the tumor and one of my lymph nodes.

Has anyone been in a similar situation as me and skipped radiation and/or chemo, and if so, how are you doing? I will also post this in holistic/alt medicine, because maybe it fits there, too....I will be taking the tamoxifen though, which I will start after radiation if I end up doing it.....Thank you for any responses!



Categories