MBC Connect patient registry. Important. Check it out.
Let's accelerate metastatic breast cancer research together.
MBC Connect is an interactive, web and mobile-friendly patient registry, where you can share information about your MBC disease history, experiences, and quality of life. Learn more and Join the Registry here: MBC Connect
Note: Available in English and Spanish
MBC Connect is an initiative led by the MBC Alliance. The MBC Alliance was formed in 2013 and is the largest coalition in the U.S. focused on metastatic breast cancer. The membership comprises nonprofit organizations, pharmaceutical and biotech companies, and individual patient advocates or patients living with MBC.
info@mbcconnect.org or call (646) 497-2695
Comments
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US only, Canadians need not apply.
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I cannot find someone to contact on the MBC Connect page, but maybe I’m missing something, but the survey only asks when your primary breast cancer was diagnosed. They don’t ask for the date when MBC was diagnosed, so when you look atthe pie charts/data analysis at the end of all the surveys, the length of time known for MBC is incorrect!
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Thanks, Chemokaze, It was designed by the MBC Alliance, to which Breastcancer.org is a member.
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- 375 Members by Location
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- 177 Singles With Breast Cancer
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- 50.4K Connecting With Others Who Have a Similar Diagnosis
- 204 Breast Cancer with Another Diagnosis or Comorbidity
- 4K DCIS (Ductal Carcinoma In Situ)
- 79 DCIS plus HER2-positive Microinvasion
- 529 Genetic Testing
- 2.2K HER2+ (Positive) Breast Cancer
- 1.5K IBC (Inflammatory Breast Cancer)
- 3.4K IDC (Invasive Ductal Carcinoma)
- 1.5K ILC (Invasive Lobular Carcinoma)
- 999 Just Diagnosed With a Recurrence or Metastasis
- 652 LCIS (Lobular Carcinoma In Situ)
- 193 Less Common Types of Breast Cancer
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- 50 Immunotherapy - Before, During, and After
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- 1.4K Living Without Reconstruction After a Mastectomy
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- 591 Pain
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- 8.4K Surgery - Before, During, and After
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