Lymph node involment

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Samnjb
Samnjb Member Posts: 26

hi

I am going crazy and scared. I have planned for double mx on Monday. I have 6 mm lobular invasive tumor that is almost on my sternum. It’s strobgly er and pr. I had a vacuum biopsy on sept 13 and my surgeon looked and examine s my lymph nodes and said they look great. I am curious how many people had positive nodes. My anxiety is so high. I do thank thankful for sight and you all

THanks

Comments

  • PebblesV
    PebblesV Member Posts: 658
    edited October 2018

    Hi Samnjb - I also have positive lymph nodes. Did a lumpectomy and sentinel node biopsy with just 2 nodes removed, and it came back that both nodes had cancer. In your case, it's very likely that if you are strongly ER and PR, your Oncotype DX will be low and you can be treated with just the surgery and hormonal treatment. You would not require chemo. In my case, I will probably require chemo so that's what I'm struggling with now.

  • Dani444
    Dani444 Member Posts: 522
    edited October 2018

    Hi Samnjb I have invasive lobular as well, and am having a UMX on October 25th. You should join us over at the October 2018 surgery group. My surgeon has said my nodes look good on imaging so far, but that fear is always there. My MO said it is very unlikely that I will need chemo due to the nature of the lobular ( it is slow growing) and the fact that it is strongly ER PR positive. I may still need radiation but will not know until final pathology. All the waiting really does get exhausting and I am sorry you are having so much anxiety. I feel that way myself now that my surgery date is getting closer. I will include you in my prayers and send you all the good thoughts, I hope for you to find some moments of peace and rest before your surgery on monday.

  • gb2115
    gb2115 Member Posts: 1,894
    edited October 2018

    I had a positive node. I just had to get radiation to lymph node area. I was terrified of it too, but it was ok.

  • nowheregirl
    nowheregirl Member Posts: 894
    edited October 2018

    I had stage 2b IDC and 2 of my lymph nodes came back positive. Now I am a 13 year survivor. :)

  • beach2beach
    beach2beach Member Posts: 996
    edited October 2018

    Hi, I had a 7mm invasive lobular and did a double mx. my sentinel node biopsy came back clean. Im hoping yours will too.

  • Samnjb
    Samnjb Member Posts: 26
    edited October 2018

    that’s great, can I ask how you found your ilc?

    Thanks for the reply

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