Neuropathy and Caffeine?

WC3

Has anyone noticed and increase of neuropathy with caffeine consumption?

I've had intermittent neuropathy that I have noticed seems to correlate with my tea consumption and I'm wondering if it's coincidence or causation.

Vslush

Thank you for this, as I've got lingering neuropathy (slight), and the one thing I haven't given up is Mt Dew (I know, Soo bad!). Never thought about the possible connection. Hope someone comes along with some insight on this.

Vickki

WC3

Vickki:

There is surprisingly little information out there on the subject. But I am two weeks out from my last infusion and yesterday I had no neuropathy yesterday. I had some unsweetened green tea that afternoon though and woke up with neuropathy today.

Vslush

I think I will try to drink only water this weekend and see if it goes away. Bring on the caffeine withdrawal headache! Lol. I'll let you know if it makes a difference!

Vslush

Almost forgot... Congratulations on finishing chemo!!!

Vickki

WC3

Vickki:

I worded that poorly. I am two weeks out from the infusion I just had. But my infusion next week will be my last infusion so I will take an early congratulations :-)

Vslush

WC3,

Wishing you well on your final chemo this week. May it be uneventful with minimal SEs. Ring that bell...you did it! ☺️🎉

Vickki

L8Blmr

WC3, I don't know if there is a correlation between caffeine & neuropathy, but here is my experience.. I did not drink caffeine during chemo and I had severe neuropathy in my feet. MO wanted me to take gabapentin, but I didn't want any more drugs. It was suggested by an orthopedic doctor to take 500mg Vit. C and 500mg B-Complex for nerve regeneration. Within 3 days of starting the C and B, the burning in my feet was completely gone. It has been 3 months since I started taking the Vit C and B-Complex and the neuropathy is about 95% gone. Last week, I started drinking one cup of coffee 3x/week and still no neuropathy.

And YAY - you're done with chemo this week!! Congrats!!

Spookiesmom

green tea is higher in caffeine than black tea. I had some neuropathy before chemo from diabetes. Now I have CIPN. I don’t notice any difference in it with my caffeine intake.

WC3

Plot twist!

My dad says he gets neuropathy when he takes caffeine pills.

I guess it's maybe something in my family.

L8Blmr, Vickkig

Thanks for the congrats :-)

L8Blmr:

Thanks for the tip. I've just been for going my morning tea but I would like to have my cake and eat it too so I will give the vitamins a try.

Spookiesmom:

Thanks for the input. Sorry you developed CIPN. Did it happen during thr chemo?

Spookiesmom

Yes, I had a severe reaction to taxotere. Was horrible. It’s also in my hands.

Vslush

What is CIPN?

Spookiesmom

chemo induced peripheral neuropathy.

Vslush

Oooh! Should have known that one, just hadn't seen it acronym'd before. Duh! 😲

Spookiesmom

That’s ok, live and learn😄😄

CaliKelly

Hi all! My cipn is still aggravating me, 3 years post TAC chemo and 1 year post Xeloda chemo. Tried all mentioned vitamins, otc topical pain rubs, Gabapentin (helpful about 50%) Cymbalta, (Not very helpful) and CBD oil( helpful, for short amounts of time). Don't drink coffee so that's not a factor. Since I'm a former fitness trainer, and workout every day, it's a real drag😜Has anyone tried BAK? Baclofen, Amitriptyline, Ketamine topical lotion? I've only read about it recently, going to ask my oncologist, be good if I could quote some other's experience. Cipn really sucks! Btw, CBD oil actually kills the pain and jumpy, tingly feeling,is relaxing ,esp.at night, but wears off after an hour or 2. Not the one from hemp, though, that didn't work. And I was against legalizing It!