Clusters/lump/history/gene

BluGene

Hi everyone!

This is my first post, so I’ll introduce myself with the details that might matter:

I’m 35 live in Canada

Long family history of breast and ovarian cancer

I have been genetic tested and am positive for RAD51D gene. Mostly relating to ovarian cancer, but there are many studies relating to BC, including triple negative (grandma had that no one at 49)

I had a hysterectomy 7 years ago. Only ovaries are left for now.

I have had mammos for the last 3 years. First one showed many micro calcs in Rt breast. Second one 6mo later found lump, got US and told benign.

Third one -a year ago- there was mention of increased density in rt breast, but I also lost a lot of weight (by trying!), so that was noted as possibly why.

Fourth one was a month ago. Density increased. Micro calcs are now changing and clustering. The technician also found a lump as she was placing my breast on machine. She asked if I knew about it, but I hadn’t been doing self exams, and I wash with a mesh ball in the shower. I should have felt it. It is very noticeable even with just a gentle swipe across the middle outter side of my rt breast. Felt like a pebble. Nothing like lump from before. Since then it has slightly grown with the lumpy tissue around it bulging more too, also slightly, but I feel them more

Scan showed it’s in same area as clustering micro calcs. Referred for stereotactic biopsy on the micros and ultrasound on lump.

Had US a few days ago. She noted I was very lumpy, and got my results yesterday. It is assumed a cyst. Went to my doctor yesterday for the results and he was very surprised they didn’t want more follow up other than what mammo referred to.

He felt my lump and immediately said, “yeah that needs to be taken out right away.” He called the surgeon while I was sitting there and didn’t hold back on his concerns. I’ll be having it fully removed and tested within a week or two he said.

I’m very optimistic in nature, and even this, because I’ve been so proactive, isn’t even scaring me terribly.

What I’m on here for is curiosity. Do lumps that show as cysts on US sometimes come back from testing with results other than benign?

Also, what types of questions do I need to start asking? I obviously know I have a higher/increased chance of BC based on family history alone, but coupled with a cancer gene and clustering/changing micros, even more so.

I’m not scared. But I do feel very differently about my breast. Even before the last mammogram. I used to like it being touched and in the last six months, it is irritable and uncomfortable, and I just feel “icky” when my husband goes there. (Yes he knows now and doesn’t anymore).

Anyone relate to this situation? I have a great doctor, I just need to know what information I should gather. Even so that my daughter has it for her future. Most of our family members who had it have passed away from it. My aunt is a survivor (twice).

Oh and there is also conversation about mastectomy. I’m leaving that one until necessary but it is officially on the table.

Thanks everyone!