Back to stage ?

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WC3
WC3 Member Posts: 1,540

Well I just got the results of my 2nd MRI. They used a mode the first MRI did not include, and the stage has gone back to undetermined...but I guess it's always undetermined. More testing. They want to do a bone scan but I had a PET/CT three months ago, the report of which did not note anything in this area, and I'm wondering if the radiologist who read the 2nd MRI was not aware of the PET/CT or if changes can happen that fast or if the bone scan can detect things a PET/CT can't.

I really wish it were easier to sit down and talk with the radiologist. I tracked one down once. It took a number of phone transfers, mainly to wrong departments, and eventually I was connected to a very surprised radiologist in a reading room.



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  • JoE777
    JoE777 Member Posts: 628
    edited August 2018

    I had a significant change from my original pet and the one 4 months later. 2 out of 5 tiny spots disappeared and the other three significantly reduced. The 5 lesions in my sacrum significantly reduced also. If you're under treatment good news. My oncologist explained it all to me.
  • WC3
    WC3 Member Posts: 1,540
    edited August 2018

    I'm under treatment but the second MRI used a mode the first MRI didn't and saw something as a result but the PET/CT report from 3 months ago did not note anything there.

    I'm just a bit hesitant to have the bone scan because, due to an unfortunate sequence of events, I've been exposed to an uncomfortable amount of radiation in the past few months and I want to be sure that the MRI radiologist looked at the PET/CT images before I go expose myself to more.

  • WC3
    WC3 Member Posts: 1,540
    edited September 2018

    So my bone scan came back "negative" but not exactly. I have heterogeneity in my sternum. This can be a normal variant but can't be determined to be a normal variant if the person has cancer. I was looking at my PET/CT images and while there is not a hypermetabolic focal point in that region of my sternum, there is a diffused increase in metabolic activity on that side. But then again that is the side the tracer was injected on and it glows more in general. This is like Shrodinger's cat only when one looks in the box one can't determine the state of the cat because cats sleep a lot and the cat might be sleeping. Maybe I will just see if they can do a biopsy during my surgery.

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