benign phyllodes

laurenchandler

The 5 cm mass they thought was a fibroadenoma was a benign phyllodes tumor - there were NO marginal tissues excised during surgery. Does anybody have experience of a re-occurence of phyllodes tumor?

sm627

Hi Lauren,

I personally haven't had a re-occurence yet, but I have heard from many women that have. Phyllodes even if they are benign can come back again. That is why it is so important to get good margins, between 1-2cm, when the phyllodes is removed. My phyllodes was a borderline and was 17cm I had to have a mastectomy. Here are some links to the less common breast cancer forums that I found helpful. What kind of margins did you have? I hope your surgeon is going to be following you very closely to make sure your phyllodes does not return. I am seeing my breast surgeon every 6 months and getting annual Mammograms along with MRI.

Info on Phyllodes from the Mods

community.breastcancer.org/forum/137/topics/865186?page=1#idx_1

Thread Phyllodes tumor lots of questions

community.breastcancer.org/forum/137/topics/828205?page=1

Wishing you all the best and hope you never have to deal with another phyllodes. If you have any other questions please ask we are all here to help you!

Hugs,

Sara