Back Again - Chest Wall Recurrence

Options
TrixieBoo
TrixieBoo Member Posts: 17
edited August 2018 in Just Diagnosed With a Recurrence or Metastasis

I can't believe I am back (don't we all say that -- but its so true).

I had an original DX of TNBC, Stage IIA - did neo chemo & bilateral mastectomy. I even achieved a pCR.

Yesterday I was DX with a recurrence within the muscles of my chest. Two interesting (scary?) changes is my cancer changed to ER+/PR-/HER2-.

Also noted on my pathology report is the comment "desmoplastic tissue infiltrated by cords of highly pleomorphic malignant cells with numerous mitoses". I started to Google 'pleomorphic' and scared myself silly so I decided to stay away from Dr. Google for a while.


Anyway - thanks for listening to me. I just don't understand cancer.


· Share on FacebookShare on Twitter

Comments

  • Moderators
    Moderators Member Posts: 25,912
    edited August 2018

    Lola,

    We're so very sorry to hear of your recurrence, but we are so glad you've come back here to this safe space for information, advice, and support. We're all here for you and you're sure to get great help here from others who have been through what you're experiencing.

    Please keep us all posted on your treatment plan and how you're doing!

    --The Mods

    · Share on FacebookShare on Twitter
  • KBeee
    KBeee Member Posts: 5,109
    edited August 2018

    I am so sorry to hear of your recurrence. Praying this has not spread elsewhere. Hoping your team has a plan in place soon. Cancer sucks.

    · Share on FacebookShare on Twitter
  • TrixieBoo
    TrixieBoo Member Posts: 17
    edited August 2018

    Thank you all for the support, I really appreciate it. I have a PET/CT scheduled for next Wednesday (it was supposed to be on Monday but my insurance co is being an ass but that is another story LOL) and I get results on Friday.

    If all cancer is in my chest area, we are possibly just looking at surgery + radiation. Any other areas -- well, I am not mentally ready to deal with that prospect just yet. :)

    · Share on FacebookShare on Twitter
  • grainne
    grainne Member Posts: 245
    edited August 2018

    That seems a very sane attitude to me: deal with what's in front of you a day at a time. Keep posting; we are with you. ×

    · Share on FacebookShare on Twitter
  • Jojobird
    Jojobird Member Posts: 203
    edited August 2018

    Kelly 21,

    I'm so sorry to hear of your recurrence. It's very difficult to get this news, I know. I was dx with recurrence of TNBC in March and am just finishing chemo, possibly radiation, but also surgery. Scans in 2 weeks.

    You are not alone. Please keep us posted.

    XO

    Johanna

    · Share on FacebookShare on Twitter
  • TrixieBoo
    TrixieBoo Member Posts: 17
    edited August 2018

    So.....

    I had a CT scan on Tuesday. I just checked my patient record and results were posted.

    "Evidence of metastatic disease with innumerable liver lesions in the left and right hepatic lobes. The largest in the left lob measures up to 4 CM. The largest in the left measures up to 5 CM.".

    So that's it - I'm the newest member of Metsville.




    · Share on FacebookShare on Twitter
  • grainne
    grainne Member Posts: 245
    edited August 2018

    I'm so sorry. This is the start of another journey for you. Keeping you in my thoughts. X

    · Share on FacebookShare on Twitter
  • KBeee
    KBeee Member Posts: 5,109
    edited August 2018

    I am so sorry you are dealing with this. Since it is ER positive this time, I hope that more treatment options exist which will knock down those lesions

    · Share on FacebookShare on Twitter

Categories