Sweating? Heat sensitivity? what is UP?

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I'm trying to find out why? I have become extremely sensitive to heat and sunlight, I don't know if its the chemo or radiation or meds or what, but I can't walk outside without massive sweating. Its not hot flashes, I am post menopausal, its not night sweats, its all sweats. I can stay in the AC and be fine, ok on the energy level, get things done. I can walk out to the mailbox in 80 degree heat, and before I'm back in the house, my head looks like I've dunked it in a tub. Its not the body sweats, its just my head and face. I mean DRENCHED. and after a trip to the mailbox in the heat, I have to lay down and take a nap. The sunlight and heat on me absolutely make it impossible to breathe, My heart races, I'm dizzy, and just utter collapse of all systems. Once I'm back in the AC for an hour or so, I'm ok again, but this is crazy. I live near the beach and can't go outside at all!

I think the radiation to both breasts/underarms killed any sweat glands there, because I really don't sweat anywhere except head/face.

Am I the only one? what do we have in common that could be causing it? HELP!

Comments

  • DodgersGirl
    DodgersGirl Member Posts: 2,382
    edited August 2018

    Onejeno—. I feel the same way. I don’t sweat under my right arm any longer but sweat drips down my face because I sweat along my hairline. HATE it. Never had this issue prior to cancer treatments

  • Spookiesmom
    Spookiesmom Member Posts: 9,568
    edited August 2018

    RO nurse said I wouldn’t sweat on rad side, and I don’t. Had BMX, no underarm sweat on other side either. Anywhere else, all bets are off. I can’t do ANYthing, inside or out without looking like I’m just out of shower. This summer is the worst yet. I’m 6 years out. I stay in a/c as much as possible have fans all over, going all the time.

    I have no solutions except those, winter is coming.

  • WC3
    WC3 Member Posts: 1,540
    edited August 2018

    My mother had this sweating issue which primarily affected her head and face and it turned out she had hyperthyroidism and a pituitary tumor which they think is non cancerous but can still cause problems.

  • Whateverittakes
    Whateverittakes Member Posts: 43
    edited August 2018

    Wow I've been having this major issue myself! I don't sweat where my nodes was removed, but my face and everywhere else looks like I'm stepping out the beach! Even my hair! I've never sweated like this before. The heat makes me sick as well, I can go out for a few mins then I'm drained I need a shower and a nap! Anyone have any suggestions?? I have a upcoming appointment with my oncologist I'm going to ask her & I'll come back and post what she says. Also ladies when you sweat near when your MX is does it burn horribly?? Best wishes SA

  • Spookiesmom
    Spookiesmom Member Posts: 9,568
    edited August 2018

    ALL my docs, pcp, Endo, MO, cardio, sic the vampires on me. My labs all come back in range. I don’t know what to do except lay low and sweat.

    I’m in Fl will be hot and sticky till mid October.

  • Onejeno
    Onejeno Member Posts: 14
    edited August 2018

    Thanks ladies, at least I know I'm not alone. and yep, this heat makes me ill as well, winter is coming. Ive never been a fan of the heat, but sheesh, this is crazy. get bloodwork done regularly, all my numbers are fine, and I've had lymph nodes removed from both pits, so maybe thats why its so bad on my head, no place else to sweat. Can we bring back the 80s sweatbands? we can rock it!

  • JKL2017
    JKL2017 Member Posts: 437
    edited August 2018

    Onejeno, I have almost exactly the same issue - all sweats sums it up! I didn't have chemo but, like you, I am taking exemestane & one of the side effects listed for it is unusual & excessive sweating. My MO suggests taking effexor but I really don't want to take any more meds. I'm going to try acupuncture & I'll let you know if it helps. I'd like to remain on this AI because my other SEs are fewer than they were on anastrozole. Please let me know if you find anything that works for you. (I'm hoping that cooler weather will bring SOME relief!)

  • Whirlaway
    Whirlaway Member Posts: 64
    edited August 2018

    I also had this issue. It seemed to have started on my last round of taxol. Didn't have it on DD A/C. It seemed to get worse after rads. My blood work was always normal. I don't take any other meds so I am sure it was a combo of treatment. I did a year of acupuncture and I am happy to report that finally this July the sweating/heat flashes went down to a minimum. I even enjoyed a beach vacation which I was sure I would never be able to do again:)

    The heat flashes used to make me really sick and weak feeling and I could feel the sun through the clothes on the radiated side. Much, much improved now!! I am eating healthy, staying hydrated, exercising but I do believe it was the acupuncture which made all the difference for me. I do not sweat on cancer side much either.


  • VL22
    VL22 Member Posts: 851
    edited August 2018

    I sweat so much it is truly embarrassing. It started when I was on taxol. I finished that up last December. I think it is the tamoxifen now that has me sweating.

    It is worse after I exercise. I’ll go for a run, sweat like a normal person. Then, like 10 minutes after, the waterworks start. It was so bad after I went for long walk with a friend that I wouldn’t sit in her sofa- the back of my thighs were that wet.

  • Spookiesmom
    Spookiesmom Member Posts: 9,568
    edited August 2018

    my cardiologist just put me on a new BP med. while reading the info sheet, one of the se can be excessive sweating. Maybe we should check our meds? Haven’t started this one yet.

  • Onejeno
    Onejeno Member Posts: 14
    edited August 2018

    I'm taking effexor too, it doesn't help with the sweating/not sweating, or if it does I'd be in real trouble without it.

  • Whateverittakes
    Whateverittakes Member Posts: 43
    edited August 2018

    I agree with you on the effexor Onejeno, but I been on that a year. I was not like this until my surgery. I didn't start medicine until this month, I've been hot since surgery. At first I thought maybe anxiety, nope. I had to ask for a fan in the hospital. I will pour sweat. I wonder if it's something to do with how our lympmatic system drains now? SA

  • Spookiesmom
    Spookiesmom Member Posts: 9,568
    edited August 2018

    Effexor is supposed to help cut down the hot flashes. Didn’t do much for me.

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