Saw surgeon today. ER/PR %?

Jadedjo

story is: he says while he can't say 100% he thinks there is no node involvement but will be doing sentinel node, we discussed options I decided on dmx with implants already or dmx no rec because my gut is telling me if I leave it be and just get a lumpectomy and rads.I will be back in his office within a few years with the other one.

Seems like an ok guy he tried to talk me into just lumpectomy but respected the fact that I said my gut was telling me if I don't do a mastectomy I would be seeing him again for the same reason whether a reoccurance on the right or a new primary on the left. Still possible with mx I know but less then if there were tons of tissue left.

I am told in mb they don't do her2 or oncotype until after surgery when it's time to discuss other treatment options depending on what surgery pathology says.

he said due to its far off location he and ps could possibly do nipple sparing so basically it's all up to the ps of what I'm a candidate for. I'm not here for cutting any other part of my body but the breasts and nodes if it has to come out so only option for reconstruction for me is direct to implants.He also mentioned it would help that I'm willing to go to a much smaller size (full B or small C)instead of same size.They are making the appt with ps but it will be 2-3 weeks before I get in.Won't know anything for sure until I see plastic surgeon and then he and surgeon choose an actual surgery date. He did tell me there are many plus sized women that have implants so it might not be as much as an issue as I think he just can't say for sure cause it depends on a lot of factors.

Biggest issue right now is with all the health care issues in the city my surgery won't be until beginning of October. He said since the low grade and other stuff it needs to be done within 3 months of this day before there is cause for concern.

My ER is 80% and my PR is 100%.

I have no freaking idea what that means.

So I'm still in the wait and see game but now it's with the PS.

I'm trying to look at the silver lining. It gives me almost two months to build up my muscle strength and hopefully maybe if my body would stop being so damn cruel allow me to lose some weight so my possibility of complications is reduced for surgery.

This here is the update so far *shrugs*

mustlovepoodles

ER means estrogen receptor and PR means progesterone receptor. Both your ER & PR are strongly positive, which is a good thing--Because your cancer is responsive/receptive to female hormones, they can be switched off with medication.. ER+/PR+ means you are much more likely to have a very treatable "garden variety" breast cancer. Many of these cancers are treated with lumpectomy, plus radiation or mastectomy alone, plus a daily pill to suppress your hormones.

As for why they wait on the Oncotype, i can tell you this: the Oncotype they did after my biopsy was ER+ and weakly PR +, enough that it was classified as fully positive. That meant all i needed was lumpectomy, radiation, and a pill, and I'd be out the door. Go, me!

Well, after my lumpectomy, they re-ran the Oncotype and discovered that the weakly positive PR was now completely negative, which is a more aggressive type of BC. My MO took it before the hospital tumor board, where the consensus was that i needed chemo. In the meantime, genetic testing revealed two rare gene mutations, so now I needed 4 rounds of chemo followed by BMX. Foo!

Hang in there. I know the wheels of medicine are turning slowly. Hopefully, they can get you into surgery before Oct, just for your peace of mind.

Jadedjo

@mustlovepoodles

Thank you for the clarification.should have known really my hormones have been ruining my life since puberty.of course they would be trying to kill me too.

Wow that's a huge turnaround from just surgery and a pill.sorry to hear that.i hope things go well for you.

If I knew it wouldn't spread I would totally ok with the oct date as it gives me close to two months to build up body muscle strengthen my core,get my blood pressure and blood sugars under better control which means a reduction of complications during and after surgery. 

I'm mostly ok with it now if it wasn't for the consistent worry that the more we wait the more it spreads.he told me as long as it gets done within 3 months of this date it should be ok. Now I'm just hoping I'm a decent candidate for dti.

I'm willing to go flat I don't want much just something to say I got boobs.theyvdont need to be out there all waving or anything. Which is why I'm willing to go two sizes smaller if they let me.

I go by my instincts and my instincts are telling me dmx one way or another that a lumpectomy won't work for long and the other jerk on my chest is getting its own surprise ready even though right now it's coming back clear. I ignored them in march when all the breast cancer "omens"started popping up in my life if I went then I would be well into surgery recovery by now and know where I stand further treatment wise. Now I'm facing my birthday next week knowing I have breast cancer but not knowing if it is spread further are is just in the breast. 

If I end up neeeding chemo it's likely I will start just a few weeks before  xmas. So I'm dealing with this crap on the two worse times of year for me. It's not good anytime but I'm already in a bad place emotionally right now because another year older another year alone and xmas it's worse.

And now I have the knowledge I'm never going to be a mom. I'm also not likely to find a great guy either cause they are all taken or gay around here, it was damn near impossible before the cancer.very impossible afterward.

Thank you

Tell me about it the wheels around here slowly squeak and turn.

Blessed be and take care.