making a come back "its not a tumor"

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jillcad
jillcad Member Posts: 1

TNBC III a/c red devil 4, nuelastra trial I agreed to trial didn't know each shot was 5k, and still white blood cells dropped to dangerously levels i was given blood transfusion, then 14 weekly Taxols ate up my finger and toenails, extreme nueroopathy, which led me to return to orthopedic surgeron for birth defect surgery age 18, it accelerated my age related aliments, arthritis, so much worse, now orthearthritis in spine and hips, multiple bone spurs from lower back to neck. pressing on nerves causing neuropathy, they will not operate again. The arthritis in all my joints has gotten worse and the osteoporosis from bone and muscle loss is not improving with tried treatments only making bones really painful.

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  • oxygen18
    oxygen18 Member Posts: 164
    edited August 2018

    jilllcad,

    I am so sorry you have been having such a difficult time.

    Are you done with chemo now, and is your oncologist following you up?

    There are a variety of drugs to strengthen bones, perhaps they could try a different one?

    My toes got quite messed up too, it took them a while to start going back to normal.

    When dealing with a whole lot of symptoms, sometimes it can be your primary care doctor that can best help you map out a strategy to start feeling better.

    I hope you stay in touch. Take care.


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