DCIS - just diagnosed

B-A-P

Hi everyone ,

I've posted before but now have a diagnosis. I'm only 30 so I'm quite nervous. I have a few questions. As of right now , I don't know many details. I was told that during my biopsy , I did have a papilloma as she suspected but that "it was strange because behind it I found a little bit of Breast cancer" she said it was DCIS and that it's gone. In a couple months I'll have an MRI -she said it would be too soon after surgery to be useful if they did it now. I'm beinng sent to the cancer clinic to see if there's anything they can offer but she suspects that we will just be monitoring me every 6 months. I'm also being sent to genetics.

My questions are - did any of you have the biopsy, and I guess I had a lumpectomy (I have NO idea what was done , except biopsy ) and that was it for treatment ?

What is the standard tx ?

Anyone have no reoccurrences since ?

Shouldn't I know more ?

It's driving me crazy. I don't see my family dr for two weeks but I want to ask for my report. My husband thinks it'll be too much info for me to handle , or it'll make me too anxious. But I feel like knowledge is power. It makes me more nervous that she seems to be brushing it under the rug as if it never happened.

And maybe I'm sensitive because I've been after them to give me a biopsy for so long and I was turned away . Thanks for any input

Happygirl0766

Hi ! I had an MRI guided biopsy May 31. I had Invasive Ductal Carcinoma 8mm and a papilloma that was over 10 mm same breast one at 12 o’clock and one at 6. Biopsy confirmed it. I had a radical lumpectomy on June 19th. Saw radiation oncologist and Medical Oncologist yesterday. Planning for 6 weeks of radiation followed by medical management for 5 years. It was caught early. I called after a week after my biopsy. It moved quickly. Good luc

Moderators

Hugs to both of you!

B-A-P, sounds like you'll know a lot more after both the genetic testing, as well as your meeting at the cancer clinic. Can you get into the cancer center earlier that with your GP?

Happygirl0766, hello, and thanks for chiming in here. Sounds like you have a bit ahead of you, but indeed, so good it was caught early. Glad you found us. We're all here for you!

B-A-P

thanks for your replies 🤗 Yes I'm sure I will know more soon . Not sure how fast things will move as my surgeon was really non chalant about it all and told me not to worry. I think she really believes that it's gone and nothing more has to be done. But you know, there's always that fear that there's more. So I'm anxious for the MRI. I know that's going to be a few months away though . I'm thinking genetics is gonna take a while as well. Where I live there's really only one cancer Center and where my surgeon thinks it's gone i might be lower priority.

I guess the not knowing is bothering me. I'm only 30, I have a three year old , and this experience is something I have to live with and keep in the back of my mind. It's scary .

Thanks for the replies ladies

mountainmama406

I would think depending on what kind of biopsy they did/how much was removed/were the clean margins met would be factors along with your MRI coming up for what the next steps will be.

Here’s how it went down for me. Discharge, mammogram/ultrasound, biopsy, DCIS diagnosis, recommended lumpectomy/radiation, MRI, recommendation change to mastectomy. As soon as I got my diagnosis I had appts made with everyone, even the plastic surgeon hoping that we wouldn’t be needed, and got genetic testing sent off. It’s a little weird to have multiple directions going but also good bc then you’re not waiting for each step to get onto the next one. In my case my MRI was done before genetics came back and I was able to make my decisions from there

I’m 33, with a 5 and 3 year old. We are done having kids and I don’t want to deal with this again so I decided on a double mastectomy and was able to go right to reconstruction in the same surgery. Don’t regret it one bit.

Hopefully that’s a little helpful for you. The waiting part sucks, but things will get better and your plan will start coming together

B-A-P

thanks for your reply. That was helpful For me it was pain and discharge. Was brushed off for a really long time. One surgeon said I should stop drinking coffee and my problems would be gone *eyeroll*

Had an Ultrasound that revealed nothing. Then it started to bleed, which at that point she took it seriously and booked an excisional biopsy. Had a follow up 10 days later and diagnosed with a papilloma "with a little bit of cancer" Was told it was gone . Not to worry. Will see the cancer clinic to which she suspects will be a one time thing , genetics which was a choice given to me , and MRI when I'm healed , but could be months away. I kinda want To have a mastectomy with reconstruction so I don't have to worry the rest of my life that it could come back , and worse , but I don't follow up with my surgeon for 6 months. Maybe it's a good thing to wait and get more info , but it's just unsettling that I don't know much. But maybe it's how it goes it's all new to me .

Thanks so much for your input. I'm glad you're doing well

Golfnut33

B-A-P why don’t you request a copy of your pathology from the biopsy. You are entitled to this and it will give you more information about margins etc. My surgeon is very brusque and distant but she did at least give me a copy of my report and explained some key things in it

B-A-P

I did manage to get it last week. It definitely gave me a clearer picture of what was going on . After speaking to the Oncologist, treatment options seem a little unclear, but that is because we are waiting on a MRI and Genetic testing. This could take months where I live, but the MRI needs to be timed well after surgery as if I do it now, the area will light up anyway. The wait is really hard.