ILC with HER2+?

SoozyCue

My first HER2 result was equivocal. The second result was positive. I don't know at this time which type tests were done.

My surgeon isn't counting on the HER2+ being accurate until surgery and that pathology because it is rare for someone with ILC to be HER2+. He is widely considered the best breast surgeon in the area, employed by a hospital in the Jefferson Hospital network (Philadelphia), does 300 surgeries a year, and he has seen it once in his career.

My PCP thinks it's accurate because many of my problems are rare and one of my rare problems requires a strict medical diet that is mostly comprised of all of the foods that are bad for HER2. My PCP has treated me for over a decade and manages all of my (significant) medical issues. He speaks often with my specialists and surgeons, so he knows (at a higher level) every thing going on with my body.

I know there is no way to be 100% sure until my breast surgery (week of 7/16 at the earliest) but what is there general experience/frequency here with women with ILC that are HER2+?

SoozyCue

I realized that I posted in the wrong forum, so I posted in ILC instead: https://community.breastcancer.org/forum/71/topics/865710?page=1#idx_1

The basic question is: how common is a false positive HER2