Gedatolisib

EYERSHGIRL77
EYERSHGIRL77 Member Posts: 2
edited June 2018 in Stage IV/Metastatic Breast Cancer ONLY

Good Afternoon,

My bosses wife was diagnosed with Stage IV MBC, that metastised to her lungs. She started a clinical trial of Gedatolisib. Has anyone on here known someone that is in this trial or are on this trial themselves. If so what has been their/your expericence? She had to stop due to mouth sores. Do y'all have that problem as well?


Thanks & have a great day.

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  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited June 2018

    Forum: Stage IV and Metastatic Breast Cancer ONLY —A place for those managing the ups & downs of a Stage IV/metastatic breast cancer diagnosis. Please respect that this forum is for Stage IV members only. There is a separate forum For Family and Caregivers of People with a STAGE IV Diagnosis.Although it is admirable that you care about your bosses' wife, please note the forum header. The following forum might be a more appropriate place for your concerns.https://community.breastcancer.org/forum/16


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  • EYERSHGIRL77
    EYERSHGIRL77 Member Posts: 2
    edited June 2018

    She does have Stage IV Breast Cancer that is now in her lungs. My bosses wife is too ill right now to get on the computer to look into these forums and her husband is not computer literate so he asked that I do this for him.

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  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited June 2018

    Excuse me if I sounded harsh, but since I, and everyone else who posts to the stage IV forum, is dealing with our own health, the moderators have tried to limit the population who is allowed to post on these threads.

    That being said, yes I understand that she is stage IV. Gedatolisib is in clinical trials so personal experiences with it may be limited. My understanding is that it is in trials for other types of cancer beside bc. Have you used the search feature to see if anyone else has mentioned this drug or is participating in a clinical trial? I, personally, can't recall anyone being in this trial, but that doesn't mean there isn't someone on bco who isn't (I don't swear by my memory!). Mouth sores are not an uncommon side effect of other chemos, so it is not surprising to hear this.

    Best of luck to your bosses wife.

    PS: I noticed mention of this trial on the Ibrance thread. Check it out:

    https://community.breastcancer.org/forum/8/topics/...


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