Unknown cells but lowest priority for lumpectomy

vanse1

Hi everyone,

I’m new here - im hoping someone may be going through or have gone through something similar and could give me some advice.

I was only 16 when I discovered a small lump in my breast. Being a teenager, I thought it was nothing and dismissed my worries as just overthinking it. 3 years on I felt my breast again and discovered it had almost doubled in size.

I went to the doctor straight away, I said it may have gotten bigger as I lost weight - Yknow I could feel it more as I had less padding. But I weighed about 70kg back then and I’m only just reaching 80kg after 15kg of weight loss these days - so it should feel smaller shouldn’t it? Following that logic?

Anyway, she sent me off to an ultrasound clinic and I was seen by a student. She was lovely and seemed to know what she was doing, they measured it at about 1 x 1cm. After that I went back to my doctors only to be told to get a biopsy ‘just to make sure’ as they were pretty sure it’s benign due to age and other factors.

Went to a different biopsy clinic this time, and the doctor there also did another ultrasound - except this time it was measured at about 2 x 1.5 cm, a bit of a big leap. I’m unsure of which one was right. As he was trying to find the lump, he had a lot of difficulty, also saying the ‘edges were undefined’ but I put this down to him being embarrassed in front of his assistant.

When the results came back, I went to my doctor and he told me that of the 3 samples taken, one sample had ‘unknown’ cells. He was very adamant in saying it wasn’t cancer but it wasn’t benign either. He told me I need to get it out and that I’ll hear from the hospital in 2 weeks.

3 weeks went past and I didn’t hear anything, so I rang them to make sure it went through. The hospital dismissed me and said I was a category 3, the least important and that I will have to wait a year. I asked about the letter and said ‘oh no you wouldn’t of received it yet because I only sent it out yesterday haha’

I’m already going to the doctor to try and get more info on what exactly is in my breast, because the information I have gotten is rediculously unclear. I thought, if they had no idea what a bit of the tumour was, that they would want to take it out ASAP, just in case.

I’m scared, because what if I’ve caught something early and still have to wait a whole year to do something about it? I would be happy to wait if I knew this won’t turn into something really bad. But from the sounds of it, they don’t know.

Should I be so stressed out about this? I feel like I’ve been strung along by all these different doctors where they can’t decide on one thing or the other. I’m scared as I’ve known it was there for so long and didn’t do anything about it, and now I know it’s there I have to let it sit for another 12 months without even knowing if it’s just a stupid lump or not.

Sorry for the long post, I would appreciate any sort of advice or feedback

Egads007

Van, in your shoes, I wouldwait it out. Your instincts are right, keep advocating for answers. While most likely it’s not cancer, I wouldn’t be satisfied until I had a definitive diagnosis. Sooner than later. Keep us posted!