Anyone 5+ years with liver mets and ER+ Her2-?

ShetlandPony

The therapist at my cancer center says they are out there, just off living their lives and not posting.

In a couple more months I will be able to report seven years. Omg that sounds like a long time!

Do not give up hope, my friends.

SandiBeach57

Wow..almost 7 years. I didn't realize. That is so good to hear.Thank you for uplifting my spirits.

Kattysmith

I'm at three years, but my QOL has really gone to hell in a handbasket the last few months because of severe neuropathy from Taxol. My doctor and I both feel that I will be switching treatments after my next scan in July, but my options are very narrow now. We shall see what we shall see. Sigh.

SandiBeach57

Kattysmith, you sound discouraged. But 3 years is good..except that painful neuropathy. Hopefully, your transition drug will enable healing and you can resume life.

Thinking of you.

NicoleRod

Katty are you taking Vitamin B6 if not take it ...it totally helps with neuropathy

Kattysmith

Thanks for caring, Sandi & Nicole...I was stressing because my already busy schedule this week had some things added to it, but I was able to work them out. I just got a little overwhelmed, but I feel better now. Whew.

I do take b6 and b12 and ice during chemo.

I did have a lot of fun yesterday when my son, daughter-in-law, and grandson came over to eat and play board games. And I'm looking forward to a big Greek salad with crusty garlic bread tonight and a good English murder mystery with my hubby. I hope you've had a good weekend, too.

Katty

ShetlandPony

I just edited my original post at the top of this thread to say 2021: Seven years. Currently NEAD for the third time. I'm not sure how! I've had four successful treatments and three that didn't work at all.

If I can get there so can you. May there be more and more of us.

Kattysmith

That is so heartwarming and encouraging, Shetland! Rock on!

Simone80

Congrats Shetland! That's encouraging.

SandiBeach57

Hello, I just wanted to provide hope for those newly diagnosed with liver mets.

I just passed the 5 year mark of diagnosis!

You can read my bio for more information because dealing with cancer is a constant job, especially balancing quality of life and continual treatments.

Kattysmith

Sandy, that is wonderful and heartening news! I'm so happy for you! Congratulations!!!

Zillsnot4me

I’ve had liver mets I think since 2019 but been fighting bones since 2015 and lungs 2013. Been Ned but never in liver. Have been through about 6 treatments since liver. My MO that I absolutely loved and trusted moved right before the liver.

This new MO is ok. But I always feel in limbo. They head hunted her hard and waited for a no compete clause to end to get her. I went for a second opinion at another hospital. They seconded what she’s doing.

There’s one more I could see locally. I hate to change as my hospital is in the top 10, is a teaching hospital so all the latest and the staff. I love the staff. They’ve held my hand the whole time

ShetlandPony

Sandi! Thank you for posting about your five-year milestone. It is indeed, a constant job, dealing with cancer. Here's to the next five years and may they hold many good times for you.

Zills, ugh, that is rough having the onc you liked so much move. Having staff and hospital you like is a good thing. Any chance you can do an occasional telehealth consult with your old onc?

Zillsnot4me

He’s in India but I do contact him via email. He’s still as proactive as ever.