brain metastasises

Anonymous

brain metastasises

havinghope

I need to hear from all of you have brain mets or know someone who had it , i would like to share our fears and hopes and some inspiring stories of you all.

I've had the brain mets along with lung and ovary ones just 40 days ago I'm on xeloda 3000mg 14/7 cycles and dexamethasone iv 8mg twice per day since that , I'm waiting for my gamma knife procedure this Sunday i hope it pass peacefully without any problems.

any of you had gamma knife radiosurgery before? I don't know what to expect and some how worried

azs40

havinghope...there's a topic called brain mets sisters that has a ton of info/posts from the women you're looking for.

Godspeed

pajim

havinghope, a HER2+ friend was diagnosed with brain mets about 16 months ago. She had surgery and radiation. Lo she is fine now (takes her Herceptin and Perjeta every two weeks).

I find it amazing. That can be you as well.

I second the "Brain Mets Sisters" thread.

illimae

I’m on the brain mets sisters thread, come on over!

I was diagnosed with 5 small lesions and had Gamma to them in October. I hate needles, so the injection of numbing medicine in my forehead was difficult and scary but once the head frame was secured, I was ok. The fitting, MRI and radiation only took a few hours total and I went to see a friends band play later that night (Friday), then back to work on Monday.

The treatment itself was painless and worked well. One month later, all were shrinking and 2 months later 4 had disappeared and one tiny spot remained but continued to heal.

I found out on Wednesday that my latest MRI showed the last original one nearly gone but I do have 4 new ones, so I’ll be having Gamma again in the next couple of weeks.

It all sucks but it’s still treatable and I haven’t had any real SE’s to speak of.