I JUST FOUND OUT I'M TRIPLE NEGATIVE - I'M REALLY DOWN

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  • Caligirl55
    Caligirl55 Member Posts: 486
    edited March 2018

    Hope2018... So sorry you found yourself having to even research this site but let me tell you my chemo group got me through this whole experience. I was diagnosed with TN too ... When I heard the words chemo the reality hit me...but I found Starting chemo in August 2016 which was my lifesaver. Who else can understand all the symptoms you will experience as those going through it at the same time?? Sometimes you will chuckle in your misery when someone else is asking about having the big D and what you used on your sore hiney?? Honestly we are all here for you and those crazy questions ... This is all doable.

    Hugs and prayers

  • Hope2018
    Hope2018 Member Posts: 45
    edited March 2018

    Hi CallGirl55 -  Thank you so much for your encouragement.  I thought I would send you this website regarding research on triple negative.  

     We will get through this.

    https://tnbcfoundation.org/state-of-the-art-tnbc-treatment-brochure

    I hope this helps. 

    Hugs

    Joanie from Jersey 

  • DoubleBloom
    DoubleBloom Member Posts: 67
    edited March 2018

    I was diagnosed 10 months ago and despite five months of chemo, three surgeries and starting radiation two weeks ago, I still have those moments where I say "wow, I have cancer." Make that "wow, I HAD cancer!" I had a pCR. (no evidence of cancer in my surgical pathology reports)

    I've tried to follow up those statements with "And what am I going to do about that?" Mostly that question inspires me to make healthier lifestyle changes, to be around positive people, and to try to create my own peace in as many circumstances as I can. I also enjoy supporting others in their struggles wherever possible. Don't get me wrong... I crashed and burned emotionally for a few weeks in the lull between my last surgery and starting radiation. Maybe it was chemo induced menopause or maybe it was just my diagnosis finally sinking in... or both. I cried a lot as I thought about recurrence and wondered what my legacy would be. I had a few sessions with a therapist to help me process my diagnosis. That helped a little but mostly what helped was to share my feelings with those that I trusted most (not everyone can handle emotion) and then to literally force, and I do mean force myself to exercise more and release those endorphins. That worked for me. I now like to remind myself of my cancer daily as it's an inspiration to thrive physically, emotionally, and spiritually.

    We can't do anything about the diagnosis, but we can choose how we will respond to it.

  • NinjaMeow
    NinjaMeow Member Posts: 41
    edited March 2018

    I second Doubleblooming. Post treatment I crashed emotionally and saw a therapist which helped immensely. I was very active pre-diagnosis but channeled all of my anger and sadness about cancer into exercise and well being. That being said I still junk out from time to time bc being extreme is not healthy either. As for well being I rid myself of toxic people in my life and focus on learning as much as I can. At my job I give 120% bc that is my goal. Just take it step by step, day by day...

  • ventureval
    ventureval Member Posts: 23
    edited March 2018

    Hi Hope,

    Yes she did have the right spirit, and thank you and you too. I still have a bit of a rough road ahead of me still. I just finished chemo and now I will have my surgery. Then thereafter radiation. But, I know I have it set in my mine I know I can do this. I have come so far already. One day at a time. Just tell yourself that. Stop trying to think ahead. That is where I got into trouble and started living day by day. It helped me so much more. Take care. You can do this.

  • Sishi270922
    Sishi270922 Member Posts: 3
    edited March 2018

    Hola, hace 3 años fuí diagnosticada TN en etapa 1 , pasé por cirugía, quimioterapia y radioterapia estoy bien, con revisiones periódicas, pero me angustia pensar en una reincidencia, felicitó a todas por su valentía y fortaleza para sobrellevar ésta difícil enfermedad . Gracias por sus testimonios.

  • Hope2018
    Hope2018 Member Posts: 45
    edited March 2018

    Hi Ventureval,

    I'm wishing you the best with your upcoming surgery.  We will all look back and say "Wow - we did it" .....Hope you are getting a lot of hugs and please keep positive.  I must admit I get positive and then I have a little phase of crying.  But doing both is good.  

    Hugs

    Joanie from Jersey

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