Perjeta added to Herceptin for one year

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  • rethink_breast_cancer
    rethink_breast_cancer Member Posts: 27
    edited April 2018

    My name of MJ DeCoteau and I am the executive director of Rethink Breast Cancer.

    We are looking for woman who have been treated with Herceptin-Perjeta to talk about their experience.

    You can find more information in this posting or please send me a private message if you would be willing to participate.

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  • LillyDuff
    LillyDuff Member Posts: 73
    edited April 2018

    I finished TCP in August, 2017. I only have two more Herceptin infusions to go, then I will be finished with the now "old" protocol.

    So, now what? I feel like I am falling through the cracks. Can I request to be placed back on Perjeta along with Herceptin for 12 more treatments to make-up for lost time with Perjeta according to the "new" protocol? I don't want to be cut short. I see my MO next week and found the new guidelines on the Genetech website and plan to print them out and take with me. I don't want to get blown off and am willing to jump back in and repeat treatments.

    Any thoughts about those of us who fall into the began treatment before December, 2017 protocol standard of care change?????

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