waiting stressful

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Wings65
Wings65 Member Posts: 13
edited January 2018 in Not Diagnosed But Worried

I have an abnormal US mammo was good

however the US found a lesion and a biopsy

is recommended. Cant believe I have to wait

2 weeks for an appointment to follow up.

Cant focus on anything

Comments

  • bew66
    bew66 Member Posts: 81
    edited January 2018

    Wings65,

    yes, waiting is one of the hardest parts. Do you have any information on what they are seeing on US? Try to stay busy, and remind yourself that the majority of lesions that are biopsied are benign.

  • momto3sons
    momto3sons Member Posts: 311
    edited January 2018

    The waiting is the worst! Can the doctor you're seeing contact you if there is a cancellation before you're supposed to go in?

    In the meantime, try your best to find things to take your mind off of the wait - I've been reading a ton to distract myself.

  • Wings65
    Wings65 Member Posts: 13
    edited January 2018

    the report says hyoechoic lobulated solid

    lesion on US. Biopsy is recommended.

  • CindyNY
    CindyNY Member Posts: 1,022
    edited January 2018

    Wings65- I've had 2 biopsies.

    1st one after mammo & ultrasound, was booked a week+ out. I was told that there are earlier appointments but they save them for "those that really need it" and I could wait. All was negative.

    2nd biopsy after mammo & US was done on a Tuesday. They got me in that Friday for biopsy, as I was"one of those that need it." In my heart, having had one before, I knew it wasn't good. It was carcinoma. During my US the Dr who reviewed me said, even if its not cancerous, you need to get this out; she didn't like the looks of it.

    My hope for you is that what they saw on the US was not a great indicator that's its cancer. That by doing a biopsy they can confirm that.

    Best wishes to you!

  • Wings65
    Wings65 Member Posts: 13
    edited January 2018

    I am sorry to hear that. I hope you are doing ok

    .My referral doesn't even say biopsy it is an appointment

    with a breast surgeon for a consultation. The radiologist report

    rec. a biopsy of course to be sure. My dr. said the breast surgeon

    should make that decision after its read. I had gone

    to an outpatient mammo place to begin with. I am not the

    same person since this mammo and US I feel like a different

    person. thanks for sharing. Stay strong

  • StrongJess
    StrongJess Member Posts: 29
    edited January 2018

    wings I am so sorry you are going through this. I am going through the same thing, and like you I feel like a different person, I guess from the stress of things. Mammogram and us showed only inflammation and fluid so I wasn’t ordered an mri amen lesion showed on it. I am having the lesion surgically removed next Thursday well as a milk duct excision and both will be biopsied. The waiting is so stressful. I will be praying for you

  • Wings65
    Wings65 Member Posts: 13
    edited January 2018

    thank you for your kind words of

    encouragement. It is greatly appreciated.

  • Danau11
    Danau11 Member Posts: 1
    edited January 2018

    I , too, am a bit of a nervous wreck. Got word late last week that mammogram showed asymmetry in left breast that wasn't there last year - that's all I've been told. I am going tomorrow morning for diagnostic mammogram and am already scheduled for an ultrasound immediately afterwards. Is this unusual? I don't even really understand what they are seeing . All I know is I spent four and a half years with my mother while she fought for her life after a diagnosis of breast cancer that had metastasized to her bones. It was beyond horrific for her . Now , I've been suffering with back pain , that has gotten much worse recently , and doesn't really have a known cause or explanation for the amount of pain I'm in. The day after I get these tests, I am scheduled for laser spine surgery and will be undergoing four separate procedures . I was already pretty anxious about this but now with the mammo results , I am over the top worried. All I keep thinking about is how will I mak it through treatment and the entire process alone if the worse case scenario proves true? I a single woman with no siblings and all my children are away at college very far from me. I don't have a special person that doesn't work that can devote time to me . I know it's crazy to think about this before I have any diagnosis but I can't seem to stop thinking about this. I'm so scared for the tests , waiting for the results and the possibility that things won't be good. I really want to be optimistic but I'm just so darn scared right now. Thanks for letting me vent

  • Wings65
    Wings65 Member Posts: 13
    edited January 2018

    think positive and stay strong.

    good luck

  • jo6359
    jo6359 Member Posts: 2,279
    edited January 2018

    waiting is always the worst part. I went through the same thing in December. There aren't any words that will relieve your anxiety prior to seeing your doctor. I did find the Forum to be very helpful. There are so many wonderful people that's a part of this forum who is so willing to give their support. While I was waiting every ache and pain I experienced became bone cancer, colon cancer, Etc. Thank goodness, My scans were all clear. All of the aches and pains were real but became magnified due to my high anxiety. Waiting is a b****

  • momto3sons
    momto3sons Member Posts: 311
    edited January 2018

    Hugs to you Danau! I think it's pretty common to have an u/s right after a diagnostic mammogram, or at least that seems to be the course of action for where I went. I hope your spine procedure goes well, and that the mammo and u/s will show nothing is there.

  • Elijahgirl
    Elijahgirl Member Posts: 158
    edited January 2018

    Danau11 I know exactly what you are going through, I have to wait for another week for my biopsy, it has been a struggle but I watch a blog on utube titled Love is greater than cancer ( love> cancer) about this lady’s journey from her diagnosis, her chemo treatment and her mastectomy. She even threw a hair cutting party with all her close friends before her chemo treatment. It was really encouraging and reminded me that even in early stage of not really knowing anything yet that God is in Control and having a support system is even now is important. This site is great because you can get so much information on what to ask and expect. I will be praying for a good report for us both.

  • wallan
    wallan Member Posts: 1,275
    edited January 2018

    Hi Wings65:

    Hugs to you! I'm sorry you need to go thru this.

    Waiting is the worst! Absolute torture. I remember after my biopsy, I had to wait a week for results and then another week to see surgeon for treatment. And this was my second diagnosis so I was a mess. Once I saw the surgeon, I did not have full extent of what I was facing afterall. I was told they would know more after mastectomy. I waited 5 weeks for the mastectomy. Absolute misery.

    And then once I had the mastectomy, I waited 3 weeks for followup. I was a nervous wreck by this time. I went on anti-anxiety meds actually.

    Once I had results though, I waited another 2 weeks to see oncologist. But I already knew what I was facing and because I was on these boards, I was able to figure out my likely treatment on my own. I started to calm down.

    Once you know what you are facing and what your treatment is, things get much easier.

    I wish the medical community had more empathy for BC patients waiting for results and would hurry up and get us in as fast as they can, just for ease of mind.

    wallan

  • Barb325
    Barb325 Member Posts: 8
    edited January 2018

    In the same boat--today mammogram and the breast ultrasound showed a 4cm mass. I was so lucky though and core biopsy will be done tomorrow morning...though the size kind of speaks to what I'm probably facing and Im petrified.. sitting here in total anxiety. Don't even know what to do. Wishing that I can act on whatever needs to happen quickly.

  • EPJULE
    EPJULE Member Posts: 5
    edited January 2018

    I'm waiting and anxious too. Had mammogram in November, second mammo and US in December. Met with surgeon end of December. Core needle Biopsy 1 - 1/3 report indicated Bi-rads 5, first biopsy negative, CN biopsy 2 - 1/8, negative, met with surgeon, she insisted on 3rd biopsy even though I requested removal, stero-tactic biopsy (3rd) on Friday. Met with deifferent radiologist, different center for about 30 minutes prior to 3rd biopsy. He doesn't think it is cancer based on what he saw in all the films i brought with me but did biopsy. I meet with surgeon again on Thursday and frankly haven't been able to sleep well since this all started. First fibroid removed from same breast, same location in 1979 when 18. Prone to fibroids, Hysterectomy in 2013 for fibroids. Any thoughts or suggestions welcome. Thankful I found this forum.

  • CindyNY
    CindyNY Member Posts: 1,022
    edited January 2018

    Barb325 & EPJULE - Waiting is the worst! I lost many hours of sleep, researched everything I could, and nothing helps with it until you have results. Then you can at least have/start a plan of action.

    Suggestions - if you haven't already, start a notebook, write what you know, which Dr said what, any questions you have for your Dr, results as they show up. Its overwhelming, when you're in the office your mind tends hear only part of what's being said. Therefore if you can, bring someone with you.

    It all seems like "hurry up & wait." Results take time, unfortunately.

    You are stronger than you know. HUGS and wishing you both the best.

  • Barb325
    Barb325 Member Posts: 8
    edited January 2018

    thank you CindyNY... waiting for pathology now but hoping to schedule with a surgeon very soon, made the call and they will give me an appointment time once they have copies of the reports--ultrasound and mammogram. I am completely panicked. Its not even waiting for results it's wanting to get to the next steps tomorrow and not a few weeks from now. The book is a good idea and I have a bunch of blank book around here.


  • jo6359
    jo6359 Member Posts: 2,279
    edited January 2018

    Barb-waiting for the next step is so frustrating. Scary is a better word.

  • EPJULE
    EPJULE Member Posts: 5
    edited January 2018

    Thank you CindyNY for the hugs! I've certainly welcomed them through this stressful wait!

    Well today I got my results from my GP and thank God there was no evidence of malignancy. This is the 3rd biopsy with the same result but my husband and I meet with the breast surgeon tomorrow and I'm not sure what path to take next. I'm went for 3 biopsies because I was BR5 and she didn't believe the first 2 CN Biopsies were accurate. The 3rd was stero-tactic biopsy.

    Prior to the 3rd biopsy, I asked her to do an excisional biopsy instead so that it would be gone and completely biopsied. Now I'm not sure what to ask her (surgeon) tomorrow. I'm checking the site and others as to what to ask her tomorrow! I've been reading all the different posts on here! My thoughts and prayers and gratitude are with all that have shared their questions and answers!

  • MTwoman
    MTwoman Member Posts: 2,704
    edited January 2018

    EPJULE, what were the results of the pathology from each of the biopsies? Did they state what the diagnosis was? Was it the same? What I mean by that is that "normal breast tissue" findings in a BIRADS 5 situation would lead your team to believe that they may have missed their target. If they did, however, identify some sort of phenomenon (like Radial Scar, which can present much like a malignancy, and are typically removed as they can hide other things) and each of the pathology reports the same thing, then that would leave them feeling confident that they didn't miss anything. I'd meet with the surgeon and ask her/him to explain to you her/his opinion so that you better understand it and the associated recommendations. I think that questions to help you better understand what the expert thinks are your best bet.

    hugs

  • EPJULE
    EPJULE Member Posts: 5
    edited January 2018

    MTWoman, here is the pathology report from the last one. The first two said something similar BUT on the first biopsy the Radiologist, the doctor and I weren't sure they hit the target. On the second one, I saw that they were right on target. With the 3rd well... I only saw the wall but now I have Manny, Moe & Jack (The markers) and I did see all three of them and their location at the last biopsy. My husband and I met with the surgeon and she stated that she was now comfortable saying that she was happily wrong with the initial findings. I've contacted them and will still have the whatever it is removed on 2/23 for my own peace of mind and to verify that nothing was missed! Thank you for responding!

    DENSITY, RIGHT BREAST (SUPERIOR-LATERAL QUADRANT, 10:00 POSITION), STEREOTACTIC

    NEEDLE BIOPSIES:

    - BREAST DUCTAL-LOBULAR STROMA WITH BENIGN FEATURES, INCLUDING

    FIBROCYSTIC CHANGES, RADIAL SCAR AND SCLEROSING ADENOSIS,

    PERI-DUCTAL CHRONIC INFLAMMATION, AND SCATTERED DUCT ECTASIA.

    - MALIGNANCY NOT IDENTIFIED.

  • MTwoman
    MTwoman Member Posts: 2,704
    edited January 2018

    okay, so radial scar is something that very frequently ends up with BIRADS 5 scores on imaging, based on women who have posted on this site. It is also typically removed in case it is hiding anything, so I'm glad you're getting it removed just to be certain. Best of luck in continuing b9 findings!!

  • EPJULE
    EPJULE Member Posts: 5
    edited January 2018

    Thank you! Here's to B9 findings! I appreciate your input. Just realized the response was in all caps but it was a copy paste from the report! My initial assumption was that it was fibrocystic or scar tissue since it was soooooo close to the first biopsy so long ago but they burst that bubble really quick like! I will post and advise after 2/23. I'm very happy I found this site and although I hope I don't have to, I will refer friends, if necessary, in the future!


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