Leptomingeal disease?

theresalwayshope

Hello everyone,

This forum has been invaluable to me and my mother for thr last 4 years. I have come here often and posted seldom each time my mother progressed.

My mother received hormonal therapy for bone mets, taxol for a year for mets to thr pelvic organs, navelbine for2 months, gemzar carboplatin for 3 months fr liver and lung mets, and until recently 10 sessions of wbr for brain mets.

Right after the wbr.. She was quiet most times and very fatigued. It was as if she forgot to smile.. And 15 days ago she was admitted with lower limb weakness.. And altered conciousness. She regained conciousness but had short term memory recall.. And confusion.

I don't know why I am posting this.. But nothing seems to bring me comfort. I am constantly thinking of all the times I could have talked to her more. She hasn't been talking for the last one week now and is bed bound. It's very hard to tell how much she is understanding us. She looks herself.. And it feels like anytime she will start talking and being hr usual self.. Except that she doesn't. She opens her eyes and looks through us.. There are brief moments when she we feel she is there and is understanding all that's happening around us. Doctors suspect leptomeningeal disease. It has progressed so quickly. It didn't give us time to steady ourselves.

The symptoms are waxing and waning I've read. I hope we get a chance to speak or talk to her some more.

Sue2009

so sorry for what you are going thru. My dr’s thought I may have had leptomeningeal cancer in my brain last summer. It turned out to be a tumor behind my eye, growing off my skull. While I was going thru tests to rule out leptomeningeal I was very scared. Prognosis is not good. As a nurse for over 30 years I believe in talking to family even if they are unresponsive. There is a good chance they can hear you. God bless you, Sue

theresalwayshope

Thank you sue for replying.

My beloved mother passed away at 3 am on 21st Jan.

There was little we cud do to help her. I pray she had comfort in the knowledge they she was surrounded by us who loved her the most.

She was 57 years old.. And she fought with amazing grace and courage.

I wish you all the best.

Maire67

Condolences on the loss of your mother. My belief is that people hear you and know you are with them. I’ve witnessed people passing and watched them wait until loved ones left the room. I have also watched hospital staff nurses and aides spend the night taking turns to hold the hand of the patient and talk to them in gentle tones. I hope this gives you comfort. I’m sure your mom felt your love. Wishing you peace

Southernsurvivor

theresalwayshope - I’m so very sorry for the loss of your mother. It is clear through your words how veryspecial she was to you. 57 is way too young. Praying for peace and comfort for you.

jmckelly

I am so sorry for your loss. I am going through the same thing with my mother. Sending prayers and love and light your way...

wam

I am so sorry you lost your mom. As a mom I can tell you she loved and appreciated and cherished you!

theresalwayshope

Thank you fraidycat1954.. Il