Hair loss and Kisqali

Gibon

I have been recently diagnosed with Stage IV metastatic breast cancer after a year being stage II. I started Kisqali last week and was told I would only have hair thinning. I am loosing chunks of hair. Would love to hear if anyone has experienced this? My oncologist told me none of her patients had to get wigs and only had hair thinning. Thanks in advance for any feedback.

Twyse

Hi.  I have been on Kisqali for five months now.  I do have some hair thinning, but no big chunks. Just noticing more hair in the shower drain than before. I haven't seen or heard of too many people taking this newer drug so it's nice to find someone else.   I was recently diagnosed with stage IV but I have had no previous bc so this is my first line of treatment.  Maybe that makes a difference.  I also didn't notice it until about the third month.  Hopefully we will find more taking this medication and get more comments. I hope it works well for you.  It seems to be doing what the dr hoped for for me.

DorothyFromKansas

Gibon, I started Kisqali in September and though my hair has always been thin and fine, more so as I've gotten older, it has become noticeably sparse now, but I didn't lose it in chunks. Leg hair and eyebrows are pretty much gone.

Gibon

Thanks Dorothy for your response.  Any other side effects and if so, when did they start?  I am on my first round.  I started two weeks ago.  Pretty tired around 7-8 o'clock.  

DorothyFromKansas

Though I've had a few different side effects, they have been minor and they come and go (except for the hair). For me, thankfully the Arimidex/Kisqali treatment has been easy and effective so far. Other than the hair thinning/loss I have had periods of low blood counts, skin irritations and rashes, fatigue, queasiness, diarrhea. I have degenerative arthritis so I already had joint pain but that has not worsened w/treatment as some report. I hope you too do well with Kisqali.