January 2018 RADS group

Options
1…910121415…25

Comments

  • PauletteK
    PauletteK Member Posts: 2,205
    edited January 2018

    Katie, my breast and back of underarm swollen also, it is normal, many of us have this problem. I’ve been doing manual massage and stretching so make sure my arm movement is good. After couple months if the fluid still there, I plan to visit LE PT also I have a pump that would help me some I hope. Keep load up lotion and I wear my sleeve to make sure my arm is fine also.

    Gigibee.... I’ll wait for you, and save you a seat Hahahaha


    · Share on FacebookShare on Twitter
  • PVM
    PVM Member Posts: 136
    edited January 2018

    Paulette so happy for you woot woot woot. Cry those happy tears & dance away. You are done & kicked cancer in the butt!!! Cancer had no clue who it was dealing with. Your long journey is done & now is the start of the rest of your amazing life my friend.

    Gigibee we shall cheer you on in a few days like we shall cheer on all other amazing warriors on this thread. Wishing you all a minimal SE week ladies as you fight the good fight. Proud of you all.

    image

    · Share on FacebookShare on Twitter
  • Lewhy
    Lewhy Member Posts: 54
    edited January 2018

    Congratulations Paulette!! I am so happy for you. Only 3 more for me and I will be done. Cannot wait. Today they told me that my skin still looked good, just dark red under my arm. I am hoping it stays that way for the last three boosts. Thank goodness for Aquaphor. Good luck this week to everyone!

    · Share on FacebookShare on Twitter
  • PauletteK
    PauletteK Member Posts: 2,205
    edited January 2018

    Lewhy, you’re so quick to finish line, will meet you here.



    · Share on FacebookShare on Twitter
  • Chips530
    Chips530 Member Posts: 35
    edited January 2018

    Yaaaaaa Paulette,You had your last Rad & I had my 1st one. Thanks to you ladies encouragement, I felt much more relaxed going in there today.It really wasn't bad at all. I had worried for nothing.Now I can start counting down the days on my calendar till I'll be dragging out the dancing shoes too.....Congrats,Paulette,.........Dianne

    · Share on FacebookShare on Twitter
  • PauletteK
    PauletteK Member Posts: 2,205
    edited January 2018

    Dianne, count down your days and they are going fast believe me. We are tough and we won’t let Cancer takes over our life. All the techs are nice believe you will be sad on your last day.


    · Share on FacebookShare on Twitter
  • BellWAMissy
    BellWAMissy Member Posts: 17
    edited January 2018

    All I can say is "REALLY?!!" I've been having problems with fluid collection at the lymph node removal site. Surgeon drained 1/3 cup on Friday, clear, normal fluid. Have been soooooo careful with movement this past weekend only to have an infection start. Was scheduled to start rads Tuesday and now they are postponing it 2 weeks!!! I know I need to get rid of the infection but "REALLY?!! I just want to scream!!!!! If everyone wasn't sleeping, I probably would.

    From reading the posts, I know others have had delays too. Have you ground your teeth to nubs? Think I may have to do some meditation while I'm on restricted movement and activity waiting for this infection to clear!

    Glad for the posts on soft bras etc. I'll be doing some online retail therapy after meditation (so I'm more grounded and not to impulsive 😉)

    Congrats to everyone who has finished or is on the final stretch. I'll be there in March now.


    · Share on FacebookShare on Twitter
  • Towardshealth17
    Towardshealth17 Member Posts: 47
    edited January 2018

    So happy for you Paulette. That dancing snoopy is PERFECT!

    Today will be 11 of 21. My discomfort is real and does wake me during the night. It’s difficult to describe, almost like a deep itch. I know I have to just get through this. My RO planned my targeted boosts yesterday by drawing on me with a paint pen. Lol. That smell took me back to when I used to personalize various toys and items for my kids.

    Including today I have 6 more treatments to the whole breast (on my tummy) and then 5 more boosts which I will be positioned on my back. I feel like today I am reaching the summit and then I can begin my descent if that makes any sense.

    I have been on a weeks worth of antibiotics 4x a day for a toe infection that I caught early so it will be nice to be done with those and the soaking 4x a day! Onward and upward!

    Hang in there ladies, we are a tough bunch.💗🌸


    · Share on FacebookShare on Twitter
  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2018

    Paulette, What an amazing feeling it must be for you. So happy your treatment is complete! You are a positive example of gratitude for us all.

    Day 7/33 for me. So far, so good. Can't quite see the light at the end of the tunnel, but it won't be long. :)

    · Share on FacebookShare on Twitter
  • DownNotOut
    DownNotOut Member Posts: 99
    edited January 2018

    BellWA, I feel your pain, I really do! I should be on the homestretch this week, but my delays have caused me to be at least a couple of weeks from starting. It's hard to think about anything else, I just try to keep things in perspective and have a long view. Some days I have more success than others. I've noticed that I'm cussing a lot and have to apologize to my friends…I'm so sorry about your lymphedema. It sounds like you are taking good care of yourself but it isnot your fault anyway. All of our bodies are different and react differently to surgery. Hang in there and keep us posted on your plan and how you are doing.

    · Share on FacebookShare on Twitter
  • PauletteK
    PauletteK Member Posts: 2,205
    edited January 2018

    Lymphedema is such a pain and it is no way to get rid of it. I have seen my PT for three months during my chemo to get rid of the fluid before radiation now I able to keep my arm well because I wear my sleev but I have fluid on my breast and back. According to my RO the fluid will go away, I’ll see to it. I can’t do pump for awhile with my skin turned so red on my collarbone.

    Kim radiation will go fast I’m waiting for you at the finish line.

    Toward I had some nerve pains on week 2-3 it came from inside and it came and disappeared in few seconds. For me it only last for couple weeks then it disappeared completely. On week four I was so uncomfortable while I sleep so I have to put a small pillow next to me. Then things got better. So there are good days also.


    · Share on FacebookShare on Twitter
  • scaligirl
    scaligirl Member Posts: 74
    edited January 2018

    Paulette congrats on finishing!

    · Share on FacebookShare on Twitter
  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2018

    7/33, which is about 20% done. RO said I looked fine today, so I high-tailed it out of there. :) It truly is so much easier than chemo! May it stay that way!!

    · Share on FacebookShare on Twitter
  • PauletteK
    PauletteK Member Posts: 2,205
    edited January 2018

    I have extra tube of Miaderm, if anyone interested PM me, then I ship it out.

    Kim I’m waiting for you!

    Thanks scaligirl


    · Share on FacebookShare on Twitter
  • Peirce329
    Peirce329 Member Posts: 6
    edited January 2018

    Hi all, have found comfort in reading all of your posts going back to Dec. I just completed my 4/33 treatments. It is a humbling experience.


    Down: I have been thinking of you and can't imagine what you are going thru. I had to wait 18 days for my Mammoprint results and I thought that was awful, to think you are on track and ready to start treatment only to have the rug pulled out from under you must be exasperating. It felt like it took forever to actually begin treatment.




    I am also concerned because I never had an MRI. It worries me
    · Share on FacebookShare on Twitter
  • PVM
    PVM Member Posts: 136
    edited January 2018

    Paulette i don't have LE & am terrified of getting it. I knew rads could trigger it but luckily I'm doing okay. Hugs to you & anyone dealing with it & I send positive vibes.

    Kim that's great your skin is doing good & keeping fingers crossed it's like that all your treatment. We are counting down for you 😊

    Pierce stay strong & all shall be okay. We shall cheer you on as well. MRI are not that bad honestly I would close my eyes when I was having mine done as the machine looked a bit intimidating but it's not painful at all. I have had 4 done through my cancer diagnosis. You shall be okay through it don't be scared. Hugs




    · Share on FacebookShare on Twitter
  • PauletteK
    PauletteK Member Posts: 2,205
    edited January 2018

    The MRI room is cold, make sure ask for blanket. Also if you’re uncomfortable let them know, they can put pillows and make you comfortable. Because MRI could take 20-30 minuets long.


    · Share on FacebookShare on Twitter
  • CindyNY
    CindyNY Member Posts: 1,022
    edited January 2018

    Peirce329- My MRI was set up with a mirror so I could look out a window. I got to pick whatever music I wanted to listen to, they had Pandora. It was done without contrast & with, so it took a while, but wasn't long. I wasn't cold, but the machine is noisy. I think you'll do fine!

    · Share on FacebookShare on Twitter
  • Katiejane777
    Katiejane777 Member Posts: 109
    edited January 2018

    Thank you Paulette for reassuring me about my swollen breast. I'm so sorry you had the same issue.

    Bell WA I'm sorry you got your Rads delayed. Big hugs. Heal Well.

    I'm 6/21 and still swollen. Tonight I tried cabbage leaves in my bra. My sore nipple actually feels less sensitive so I may use them again, I have 1 more treatment this week and then I get 3 days off as it's a long weekend for Australia Day.

    · Share on FacebookShare on Twitter
  • PauletteK
    PauletteK Member Posts: 2,205
    edited January 2018

    I read about cabbage leaves glad it helps you out. It is always good to have some days off during my radiation I had Christmas and new year then Veterans Day off so I got three long weekend. However my skin still got burned after radiation I’m just praying things will get over fast.


    · Share on FacebookShare on Twitter
  • Peirce329
    Peirce329 Member Posts: 6
    edited January 2018

    Thanks for the words of encouragement about MRI's but what I meant is the Doctor never ordered an MRI for me even though I have dense breast an have been getting either an MRI or an automated breast ultrasound (ABUS) for the past few year in addition to my yearly mamogram. I have three generations of survivors of BC in my family (thankful I can say that) so I was considered a high risk hence the close watch. I am concerned because I have heard of a number of women who discover there is more than what the mammogram pick up once the MRI was done. I have 2mm on my one lymph node and they only took the one node! and they also detected Lymphovascular invasion as well. Anyway my doc does not recommend an MRI and I have mentioned it twice.

    5/33 radiation treatments done.

    · Share on FacebookShare on Twitter
  • gigibee
    gigibee Member Posts: 192
    edited January 2018

    image30/30 done done and done! I got to ring the bell with my family there and held it together better than expected. I am happy to be done and thankful my skin held up very well.

    · Share on FacebookShare on Twitter
  • PVM
    PVM Member Posts: 136
    edited January 2018

    congrats gigibee woot woot woot you did it!!!! Glad you cried the happy tears & were able to ring that bell with your family beside you. You are a true warrior now you can relax & let your skin heal!!!!!

    · Share on FacebookShare on Twitter
  • Towardshealth17
    Towardshealth17 Member Posts: 47
    edited January 2018

    Congratulations Gigibee. I am so happy for you. You did it. We know what it takes. You persevered!Big hugs.


    image

    · Share on FacebookShare on Twitter
  • PauletteK
    PauletteK Member Posts: 2,205
    edited January 2018

    Ladies ... we can do it, gigibee PVM and I are waiting for you at the finish line.

    Oh yea, we might get some burns and we burn the cancer away!

    Congratulations gigibee 🎉🎉🎉🎉🎉 time to rest and heal!

    Pierce you are got 5 down! 💪


    · Share on FacebookShare on Twitter
  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2018

    Gigibee, Hooray! Hooray! Way to go! Now chillax and do something special this weekend!

    · Share on FacebookShare on Twitter
  • Peirce329
    Peirce329 Member Posts: 6
    edited January 2018

    Yay!! Gigibee

    · Share on FacebookShare on Twitter
  • Lewhy
    Lewhy Member Posts: 54
    edited January 2018

    Congratulations Gigibee!

    · Share on FacebookShare on Twitter
  • DownNotOut
    DownNotOut Member Posts: 99
    edited January 2018

    Gigibee - it is late, but I wanted to get my WAY TO GO GIRL in before it was too late today! Yes and amen you are done!! I am so happy for you. Please keep us posted on how you are doing!!

    Peirce - welcome to the group and we are here for you! My surgeon was confused why my RO ordered the MRI, and after double checking with some current surgery fellows said that it was not really "standard of care" since there are so many false positives... It sounds like you have been screened in the recent past with MRI and U/S, so does that give you peace of mind?

    My MR Bx was today and I would say that it went pretty well. The contrast makes me salivate A LOT all of a sudden, with a wave of nausea that only lasts about 15 minutes. I actually forgot I had that same reaction last time. I should get my path report back next week and I'll try to be a good and patient girl (haha). I'm not too sore or swollen, just taking Tylenol and keeping the ice packs going 30min on, 30min off as instructed. The tech did this pretty star with the steristrips that I thought was a nice touch :) I saw the same radiologist who did the U/S on my right breast "suspicious mass" two weeks ago, and she said that they had determined that what was seen on my 1st MRI on the right was fat necrosis from the isotope injections prior to my SNB back in Nov. So no BC there, just a slight risk of it turning into some calcifications. Have any of you other ladies who had the periareolar injections had fat necrosis? No one seems worried about it, but it is directly behind my nipple and I am really glad they did not have to do a Bx there!

    · Share on FacebookShare on Twitter
  • Towardshealth17
    Towardshealth17 Member Posts: 47
    edited January 2018

    DownNotOut sending you my best. You have been through so much, glad the biopsy wasn't too bad and sounds like you are taking good care of yourself. 🤗 Patience is challenging!

    I am slogging through. Very uncomfortable but I am so encouraged by the strength of all you ladies and I will get through one day at a time. Going to ask the RO nurse about other creams people seem to swear by. Miaderm and Calendula lotion. Right now I am using Eucerin Healing Lotion and hydrocortisone cream.

    Today will be 13/21 after today I have 3 Rads to the whole breast left and then 5 targeted boosts.

    · Share on FacebookShare on Twitter

Categories