Where to now

Hippiewanibe

Well, after surgery, chemo and radiation, heceptin and perjeta I failed tamoxifen after only a few weeks of very strong responses physically and emotionally.. It has now been a couple of years and numerous hair moltings (due to stress I am sure). I still feel extreme guilt and am sure I will have a recurrence/metastasis in the near future. Who with strong triple positive idc stage 3 grade 3 declinced endocrine therapy after only a few weeks went on more than 3 years without Mets.or who did have Mets and how did they manifest

Meow13

Have you talk to your doctor about an alternative? I was post menopausal and took AI drugs with paxil to help side effects. I tried many different drugs but made in total many 4 yrs. I am glad to be off medication.

Hippiewanibe

I do not talk to a doc or anyone as I don’t think they care. I believe as triple positive I am more than well treated with fec-d, hp so why worry about endocrine therapy?

carmstr835

I am not planning to take the hormone therapy either and I am triple positive as well. I have just completed my radiation and still on herceptin and perjeta until July. My oncologist wants me to take tamoxifen now, but I do not plan to. I am fasting for 1 week every 3 weeks, and trying to exercise every day for 40 minutes walking a treadmill and riding a stationary bike. I sure hope this gives me some sort of advantage, I am afraid of recurrence, but QOL is more important to me.

Hippiewanibe

It is challenging making decisions for ourselves when they aren't what is dictated, but quality of life is very important. Good for you for being disciplined with exercise and nutrition. I struggle with an eating disorder and have a bmi around 15 and exercise (walk) a fair bit. I was unwilling to take more drugs to compensate for the side effects of tamoxifen and ,well, after 18 months (can't edit for targeted therapy of heceptin and perjeta) and lack of control being constantly on edge I was done. I suppose one could say I ended up not coping well. It is hard to find triple positive stage 3 posts of those that have Mets and when they happened. I think I function better when I have at least an idea, but really I imagine that is something none of us have