Just heard I have low grade DCIS.....

Judeshome

This journey began in July and has gradually been evolving with Mammo,Ultrasound,CNB, MRI and an excision biopsy just a few days ago. I heard from my BS a couple of hours ago that the multiple papillomas she excised were hiding low grade DCIS 'peppered' throughout the area and suspects this is true of my entire left breast. Although nothing showed on the diagnostics for the right breast she is concerned that there may be involvement there too. I am trying to process this, my husband is being wonderful and supportive of whichever path I choose but am finding it hard to talk to friends and family about this at the moment I have a meeting with my BS next Friday to try to figure out the best thing to do. Feeling alone and so thankful for this website and all the women who are experiencing the same choices and their willingness to give advice and moral support. I am 65 and generally healthy but now feel paralysed. I know that low grade DCIS is not really cancer yet but am worried there is something else they will find when I have further surgery....seriously considering a BMX as the DCIS is so widespread. Has anyone had a similar experience?? Thanks, Jude

tlfrank

My story is not similar to yours, but I wanted to throw a ((hug)) your way.

My best advice, is to slow down, take a breath and take this one thing, one day at a time. You need more information and the waiting is hard.....so just try to breathe.

JoAnn_K

I had low grade DCIS at age 53. While it wasn't sprinkled through my breasts, my mom had died of breast mets and her mom and all her sisters had female hormone cancers. At the time, I chose radiation, lumpectomy and radiation, because of the strong family history (no genetic testing has been associated to date, but probably exists). After that time, I had three more minor surgeries due to nipple bleeding and lumps such that 6 years later, I had both breasts removed when another suspected cancer was discovered. Retrospectively, I wish I had the courage to do the bilateral mx to start with, but I wasn't ready to lose my breasts yet. It is a personal decision that only you, your support system, and your doctor can help you determine. Wishing you the best on your continued journey.

Regards,

Jo Ann