PANCREATIC IPMN

Cathytoo

Two years ago when I was diagnosed with TN breast cancer, a CT scan found an 8mm side branch IPMN. At the time I did a lot of research and felt safe enough to wait until my breast cancer treatment was finished. Today I am two years past my TN diagnosis and have had an abdominal ultrasound just to see if the IPMN is still there. It is there, same size and determined stable. I know that I need further testing because these things are considered pre-cancerous, although low risk. Anyone having to deal with this issue?

mammalou

Just got a referral from my oncologist for a pancreatic ipmn. My oncologist compared it to dci of the beast. Kinda scary in the pancreas

Kittykat9876

I'm going in for an ultrasound and biopsy of a main duct IPMN tomorrrow, no one has told me anything so I've scared myself silly with Dr Google.

Kittykat9876

Can I ask, did you have any symptoms or was it picked up on a routine ct scan, that's how they found mine.

mammalou

Mine was found incidentally during an MRI for my liver. Mine is 1 cm. My oncologist is doing a referral to a specialist for this. How big is yours?

Kittykat9876

mine is 8mm, funnily enough it's been there for almost a year and they've only just now decided to do something about it, now every time I get a tummy ache or back pain, even though my back has given me heck for 20yrs or more, I think the worst. From what I've read even if its benign they want to take it out which scares the heck out of me.

mammalou

Kittykat987. Did you have the ultrasound and biopsy of your ipmn? Just wondering how it went.

Kittykat9876

Yes mammalou I did, I was given the all clear, it's not blocking anything and it's not malignant, so I'm really pleased about that, have you had your appointment with the specialist yet?

mammalou

I'm happy to hear that you got the all clear. I'm pretty sure mine will be fine too, but no appointment yet. Still waiting. So, are they able to diagnose it with an ultrasound?

Kittykat9876

apparently the endoscopic ultrasound where they put a camera down your throat can see it better than just a normal ultrasound or ct scan, it's really painless, they give you sedation instead of full anesthetic as it only takes 15 mins, I didn't remember or feel a thing and you don't feel as bad when you wake up.

mammalou

Kittykat9876. Can you tell me when they decide to do and ultrasound vs. just mrcp mri surveillance? I finally got my appointment for 2/15. I have to admit this ipmn is worrying me! Not so much for what it is now, but the fact that it could turn into pancreatic cancer. I just went thu 2 months of tests to see if I had a new cancer in my other breast ( turned out to be adh only) and it didn’t worry me as much as this. Uggg