Having a hard time waiting

puppiesnalpacas
puppiesnalpacas Member Posts: 13
edited October 2017 in Waiting for Test Results

I'm 29 years old. Found a breast lump 1.5 months ago. No family history, young, figured it's probably a cyst or fibroadenoma, saw my PCP who felt it and said "oh, it's too big to be anything bad." Scheduled me for an ultrasound just in case. Was so sure it was going to be simple, painless, in and out, no big deal.

Just had my ultrasound yesterday. Not a cyst. Looked solid, but weird... they couldn't say it it was a fibroadenoma. Said I probably need a mammo and biopsy. Got the mammo done on the spot. I don't know what the actual report would have said, but the radiologist briefly showed me the pictures and said there were calcifications throughout the lump. (I just see a ton of white dots.) And here I am trying to interpret words from both the radiologist and the tech... "whatever it is, at least we caught it early" and "in case you need surgery, whatever it is, some things need to be removed." and when they were talking about what kind of biopsy I should get "oh yeah, we should definitely take a sample of those calcifications."

I have my biopsy scheduled for a week later (10/6). I was a mess yesterday. Woke up today feeling okay, had a fun day out, but got increasingly anxious in the evening. Don't know what to think. Don't know what to do. And here's the irony - despite being a physician (and having warned my own patients to be wary of googling), I suddenly find myself reading and googling as well. Just trying to figure out how to get through the next couple weeks.

Comments

  • windingshores
    windingshores Member Posts: 704
    edited October 2017

    It isn't that helpful to do research until you know what you are dealing with. I mean, since you are a physician, a general book like the one put out by Mayo Clinic may be too basic for you. I advise a lot of Netflix, walks and maybe just a few Ativan if needed!

  • mystic88
    mystic88 Member Posts: 155
    edited October 2017

    Hi there, I too am 29 and just went through all the process. Very similar hx to yours except I do have BC in my family. My mass turned out to be a papillary lesion with ADH and was excised about 3 weeks ago. Hope all goes well, and feel free to PM me if you need anything!

  • puppiesnalpacas
    puppiesnalpacas Member Posts: 13
    edited October 2017

    I've been researching the screening and diagnostic tools, rather than specific disorders. Which I also know is not that helpful regardless. But I also can't seem to help it, it's more out of compulsion from my anxiety. Definitely trying to do other things!

    Thanks mystic, fingers crossed!


  • Beatmon
    Beatmon Member Posts: 1,562
    edited October 2017

    I'm sorry that you are facing this challenge to your health. The waiting between tests is certainly anxiety causing event. No one seems to be motivated to get things done in a timely matter...or as timely as we think it should be.

    I didn't really have a wait..my Radiologist showed me films and said I had breast cancer...she was 100% right.

    I dearly hope that yours turns out to be benign. You may need a little pharmaceutical help to get through the next week or two with less anxiety.

    Best of luck and let us know how you are doing

  • Michelle_in_cornland
    Michelle_in_cornland Member Posts: 1,689
    edited October 2017

    I know it really sucks when you read your own mammograms, and you know what "it" is. I knew from the moment I saw the mammogram on the screen, as I popped off of the machine and had the mammographer step aside. After that, I left my health in the hands of some very capable medical professionals. I am very involved in all my decisions, and am well informed. A little knowledge goes a very long way. I have a great MO, and we are always tweaking something. I feel really great, have a wonderful diet, plenty of exercise, and a great support system. Going into a diagnosis, with a positive attitude, makes all the difference in the world.

  • Blair2
    Blair2 Member Posts: 495
    edited October 2017

    Yes, it's hard to have to wait test results. So many ifs and buts. Doctors seem not to give you a lot of details so we end up doing our own research to figure it all out. Doctors can only go by test results and therefore can't give you immediate hope or answers. It's definitely a step by step process that seems like an eternity of waiting and we can't help but worry. About all you can do is start counting the blessings. For example when I had my biopsy - they were looking at two questionable spots, but one was only cancerous. Then after the MRI, three spots had to be sonogrammed again, but they were all ok. So I counted my blessings of only having one tumor - although not a blessing in itself. It could have been worse. Keep your chin up - we can get through this.

  • puppiesnalpacas
    puppiesnalpacas Member Posts: 13
    edited October 2017

    Got my biopsy today. It wasn't bad. A little sore and I've been using ice on and off.

    Before the biopsy, I asked the doc what my BI-RAD score was. He said it was probably a 5 although he didn't consult the official report (written by a different doc). I asked for the report to be printed and it said 4. Regardless, the report has a number of things that sound concerning, including pleomorphic calcifications in segmental distribution, and irregular with lobulated margins.

    Anyhow, not very reassuring overall, but just trying to prepare for the worst.

  • Milnic
    Milnic Member Posts: 6
    edited October 2017

    Puppiesnalpacas,

    Your situatio sounds very similar to mine. I’m still awaiting bx results. Sending good vibes to you x

  • puppiesnalpacas
    puppiesnalpacas Member Posts: 13
    edited October 2017

    Got my results today. Invasive Ductal Carcinoma, grade 3. Still reeling from everything....

  • Milnic
    Milnic Member Posts: 6
    edited October 2017

    I’m so sorry to hear that sending you so many good vibes and prayers xxx I got mixed results, my biopsy was inconclusive, showed atypical cells highly probable of malignancy (whatever finding that is) but didn’t have a big enough sample size to make an actual diagnosis. Repeat biopsy isn’t an option as they had so much difficulty in getting a sample the first time. I am booked in for a lumpectomy and sentinel node bx on the 24th so then a week after that I will finally find out what I am dealing with! good luck with your treatment to come x

  • puppiesnalpacas
    puppiesnalpacas Member Posts: 13
    edited October 2017

    Good luck Milnic, hope things go smoothly for you!

Categories