Bone Mets

stephanie1

I haven't posted on the board for a while but decided it would be good for me to start trying to talk about some of what I am going through right now. I was diagnosed about 5 months ago now with mets to my bones. The PET I had showed it to be in my spine, Pelvis and femurs, and a suspicious super-clavicle node . I have been on Ibrance for the past 4 or so months and was really hoping I might get a shot at not having to do chemo for a while. Well today at the doc I found out my tumor markers are not going down and a bone scan is now showing ribs and a spot on my sternum. My doc is going to run an MRI of my spine next week and use this as the guideline as to whether I stop Ibrance and start Abraxane. So next week will be pivotal in how my life is going to go. I have been able to live a normal life the past few months so I am just really scared. Scared this isn't working, scared the next treatment won't work. You all know this drill. Anyway, I guess I just needed to let some of this out and hoping that maybe someone else can relate.

cive

Stephanie,  It took faslodex and Ibrance 4 cycles before my ca27.29 stopped rising, and then they went up again on the 5th cycle though not as high as my max.  I had a CT scan after the 6th cycle and low and behold I had regression in my liver mets and my lungs and bones were stable and my TMs were going down again.  So for some of us it seems to take a few months to respond positively.  It you stay on Ibrance, there is a very active Ibrance thread.