Anyone like me?
I had two prior occurrences of ER+ HER2- PR+ breast cancer in same breast. Prior occurrence was 2005 where I had mastectomy and give years of Zoladex. In Jan of last year, I found a mass on my sternum and spots on my lung that were suspicious of metastasis. The pet scan showed the activity on the sternum, but most spots except one were benign and one was inconclusive. The biopsy on the sternum showed 99% ER+ and oncologist indicated that if I responded to AIs and Ibrance that they could potentially "kill it off" with radiation although there was the possibility of micro cells elsewhere in my body. Long story but I had to switch oncologists to another facility and she also said potentially "curative". Again had to switch and my current oncologist goes back and forth. He initially said that even though nothing showed on the pet scan, that they kind of assume "the horse is out of the box" and so it's likely that there are micro cells elsewhere so risks outweighed the benefits of radiation. That was one visit. My CA27-29 have been bouncing up and down a bit between 37 and went up as far as 43 this week and I had another scan today and await the results. But same guy then said radiation to the sternum might be considered. Of course depending on the results of the scan, the question might be moot but wondered if anyone has or had a solitary metastasis and if so was it treated differently? Of course perhaps those people who were treated maybe with radiation or surgery (mine is inoperable), they may not be on this forum any more. I feel so confused and am getting conflicting information. Thanks to all for their help.
Comments
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I had a solitary bone lesion to the spine and was 100% ER (or close to that) 10 years ago. Please look up oligometastasis, treatment for which implies that the horse may be out of the box but is not able to get very far and may be treated more aggressively. With sternal mets that is more the case than with any other mets, just considering the distance from the breast, IMO (non-expert). Surgical resection, cryoablation, radiofrequency ablation, as well as radiation may be options. Seek a third opinion for more clarity. If you are still on Ibrance/AIs ablative techniques can be done after. In my case Ibrance was not available yet. I had chemo to kill the tumor and any microcells, followed by surgery, radiation and an AI to mop up.
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Heidihill thank you for the info. That is encouraging. Got latest scan results and all stable with nothing going on. I think is worth doing a follow up on another opinion. Very happy to see your continued remission. -
Great news on the scans!
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