Newly Diagnosed - TNBC

Options
mkn86
mkn86 Member Posts: 250
edited November 2017 in Triple-Negative Breast Cancer

Hi Everyone,

Just moved from the Newly Diagnosed Forum.

I was diagnosed Aug 11, staging completed as of Aug 21

It's cT3, pN1, M0

Currently in Germany but waiting to fly to the Philippines on Aug 31. And also waiting for histopathology translations.

Still trying to keep my chin up about all this. At 31 years old I don't think i'm fully equipped to handle the blow of the diagnosis. I keep wondering exactly how aggressive this is. If i have time to go home and get treatment before it gets worse or not.

It's a lot to take in for someone who's single. including all the things at risk that i have to consider all of a sudden. I feel like the rug has been pulled from under my feet. Just when i get to a point where i am extremely happy with how things have been going, PLOT TWIST!

I signed up for this community because i needed to find others that are going through the same thing as I am. And i'm trying to make sure I get through this with my sense of humor intact. :



· Share on FacebookShare on Twitter

Comments

  • VL22
    VL22 Member Posts: 851
    edited August 2017

    mkn86- So sorry you are here! You're circumstances, being away from home, and so young make an already horrible experience so much tougher.

    I know it is so hard to believe at this moment, but the dread and absolute fear will subside. You need to get your paperwork straight and find the best cancer care you can get. Once a plan is in place you will start to feel some control.

    Do not google about TNBC - much of the information is outdated. Do not believe that it has a "poor " prognosis. Read through this forum and you will be encouraged. And keep coming back with any questions you have - someone will help!

    It is so hard and I really do feel for you. But you will move forward and find a strength you didn't know you had.


    · Share on FacebookShare on Twitter
  • mkn86
    mkn86 Member Posts: 250
    edited August 2017

    Thank you for the encouragement Vanessa. I am hoping that once i get a treatment plan it will start to feel like i'm doing something to stop the cancer cells. And I just know it should be done as soon as possible. it's only been 2 weeks since diagnosis and 1 week since staging was done but I have alreadyt reached that point where I want to get started on getting this tumor out of me.

    I did google a lot of the terminology and the numbers for TNBC. Once i read that TNBC responds well to chemo, i just want to get started already.

    Sometimes when the tumor "makes its presence known" because it feels heavy or because there's a dull ache for a few seconds, I feel paranoid that it's growing. It's a mind game until I get a treatment plan/start treatment. But everytime i am afraid I try to focus on the first goal. I want to hear the words "pathological complete response" from the Oncologist

    · Share on FacebookShare on Twitter
  • Bellkat
    Bellkat Member Posts: 3
    edited September 2017

    I was dx in Feb of this yr, made it through chemo and a double mastectomy, path report ca me back negative! Dr decided no radiation., if I can do this as a single mom anybody can! Stay strong, there are success stories for TN.

    · Share on FacebookShare on Twitter
  • mkn86
    mkn86 Member Posts: 250
    edited September 2017

    thank you Belkat :) i'm happy for you and that's great news!!!

    · Share on FacebookShare on Twitter
  • Jojobird
    Jojobird Member Posts: 203
    edited September 2017

    I am over 1.5 years out and running 10k races, traveling, and enjoying life. So hard to see it now, but there is life after diagnosis. I wish you healing and strength.

    · Share on FacebookShare on Twitter
  • mkn86
    mkn86 Member Posts: 250
    edited September 2017

    that's amazing to hear jojobird! thank you :) i hope i have the same chances to live my life after.

    Your blog is great btw. I took a peek at some of the posts

    · Share on FacebookShare on Twitter
  • A4ggy
    A4ggy Member Posts: 54
    edited November 2017

    Good Morning,

    Diagnosed 9/7 and 1/2 way through treatments. 4 dense dose AC and 4 dense dose T starting soon. I'm nervous about the change in meds and in general nervous about everything. My what ifs take over and I have a hard time living in the moment. Hoping speaking with some TNBC patients and survivors will help to not feel so alone. I have got to stop googling as everything online is so old and out of date. I am stage 2A, chemo first, then surgery end of January. 


    · Share on FacebookShare on Twitter
  • Motherofall6
    Motherofall6 Member Posts: 65
    edited November 2017

    hi I was diagnosed October 27, had lumpectomy 5 days ago and will see my OS next week to discuss chemo and radiation, I had anxiety prior to all this and now I can’t shake it

    · Share on FacebookShare on Twitter
  • blamoms
    blamoms Member Posts: 113
    edited November 2017

    Hi


    I was diagnosed 2 years ago with 2b triple negative.I had a lumpectomy followed by ACT chemo and radiation. It was hard but this group helped. The nurses at the cancer center and my oncologist were great. We are all here to help

    · Share on FacebookShare on Twitter

Categories