Xeloda and Tykerb to slow down brain mets

Hubsofamanda

My wife has NED from the neck down since may 2016. Dec 2016 MRI finds 15 sub centimeter spots in her cerebellum. We have a successful gamma knive procedure. June 2017 they find 13 new sub centimeter spots spread out in her brain. There is a little discussion of leptominigeal disease but our rad doc doesn't think so. We discuss WBR but opt for gamma again, mostly becasue it's so tolerable. Our rad doc told us about using Xeloda plus Tykerb to slow down brain mets. We told our oncologist and at first he said there is no evidence that it works but then he decided to present her cas to a national tumor board he was attending last week. It looks like we are going to try it but we need to sit down and talk about the pros and cons. As you all say and we believe it 100% quality of life is the most important part. I do think it is contingent on the June 2017 gamma procedure being successful which we won't have the follow up MRI until the end of this month.

Have any of you heard of this combo being used for brain mets? Always interested in this communities thoughts.....thanks in advance!