Restlessness with Ongoing Herceptin and Perjeta

Purkinje

I have underlying Essential Tremor and Restless Legs. After Stage 4 full chemo, I'm now on a lifetime of Herceptin and Perjeta. Unfortunately, I am getting severe restlessness every night as well as dystonia in my arms and legs - looks like palsy or epilepsy type movements. And my head starts jerking to one side. Neurologist thinks I am crazy, says it's stress. I am NOT stressed! Only strong narcotics are helping - other drugs don't even touch it. I've been in remission since October 2015, so I've been taking these two monoclonal antibodies since June 2015. I'm looking for anybody else that has experienced ongoing neurological problems (besides neuropathy). I posted in the American Cancer Society, too, just to cover my bases - beginning to wonder if I am crazy???!!!

Has anybody else experienced these ongoing - and getting worse - reactions??? Thanks!