My Husband, My Life, My Love, My Family, My Cancer

Micmel

no banking. No mail, most stores open. Big business like ford. My son works for ford. They are closed as well. He’ll be home yelling at his Xbox. I don’t get the entire thing. Yelling At the tv. Ugh. Don’t get it. Lo

Bliss58

KBL, we lost our Doxie in 2017, and I really miss her. No dog quite like her, so we haven't gotten another. Great fetcher and protector, but so sweet. She slept with us in a king bed, under the covers at the foot of the bed and kept our feet warm!


While many of you are lamenting the heat, we are already expecting 3-6" of snow Tuesday! Ugh, yuck. Way too soon to start.

KBL

Bliss, I’m sorry you lost her. It’s so hard. This one is my fifth. Lol. I don’t search them out. They end up being people who know we love them and need a home. I’ve had the burrower. So cute. This one is not. I’ve tried to get her to go under the covers. Nope. She would also bite any delivery person’s arm off. We have a fence, and she literally bites and tugs at it when they deliver. She is a lot like her dad. If she didn’t know you when she was a puppy, you are not her friend. Two totally different personalities. I had never had one who didn’t love everybody

I’m sorry for the cold weather you’re going to be getting. I’d take one day if it to get rid of these 10-degree days.

mara51506

Bliss, sorry to hear about the snow you are going to get. That really does suck this early in the year. We are having thunderstorms the next couple of days and then a hot humid day Wednesday then back to nicer weather without the humidity. I really hope we get fall before we launch right into snow.

booboo1

Mara, so glad you were able to enjoy a good meal with your family. Seeing them face to face and being able to talk to them has got to be uplifting. I have been SO isolated here with this Covid mess, and I only have my DH or the dogs to talk to. I cannot wait until I can get out and enjoy the company of others. That’ll be a great day!

Mel, I hear you about your son and the tv. My DH puts things on that I cannot stand. I know I am not among the majority, but I hate Star Wars. Just not my thing. He puts in on very loud, and I end up in the bedroom watching something else. I can only imagine how frustrated you are with Xbox. You probably want to throw it out of the window!

I have a telehealth appt. with my MO tomorrow morning, and am going to see if she will put me on something other than Abraxane. I tolerated it fine, but I finally have enough hair back that I don’t have to wear a wig or headcover. I have already exhausted many of the drugs available, so I may not have a choice. But man, I don’t want to lose my hair again. It’s not about how I look. It’s about not wanting to wear a wig or head cover in this heat. So we’ll see. I have not tried any of the immunotherapy drugs yet. Maybe she’ll try one of them.

Hope you all have a nice Labor Day.

candy-678

Bliss- The snow sounds fine to me. I am a winter person. Cannot tolerate the heat of summer. But in my area we don't get much snow. Last winter it flurried once. Usually our winters are 40-50 degrees during the day.

Mel- Love the lamp. I have a tiffany style ceiling light in my living room--- bought at Lowes and had installed.

Mara- Glad you had a good meal and visit with the family.

Holidays are not my thing. Our family never gets together and especially not now with the virus situation. So today is the same type day for me as all the others.

Wednesday I have blood work to see my numbers 2 weeks into the new Ibrance on 5 days/ off 2 days schedule.

My notes say this week Mae has appt, Tanya has nerve burning procedure, Lee should hear scan results, and Bliss has PET. Hope I didn't miss anyone.

And Boo has telemedicine visit.

Has anyone heard from Philly? Last I read she had a liver MRI to confirm liver mets and plan. That was end of August.

BevJen

Candy,

Philly had posted on a new thread (that I think has now disappeared) asking about some possible treatments. I responded (but I don't think anyone else had) and then she responded back. I think she was meeting with her MO maybe this week? Haven't heard anything else.

Bliss58

Yes, I hear y'all about those 100-degree days. I can't stand hot weather esp humidity, so I'll be happy with this day of snow; it's just too early! One blessing could be that'll help to put out all these fires.

Rosie24

Candy, I really like how you keep notes on what's coming up for us all. It makes me feel like we're a family. I have my first appointment with my new MO tomorrow. I'm hoping to leave with a good feeling that she's forward thinking and approachable. I have a list of things to bring up.

Woke up today to distant thunder and some rain. I like a rainy day now and then and have no plans to be ruined. It may be a tv day today. We got rid of our cable, actually Direct tv, a few months ago to see if we missed it much. With Netflix, Amazon, and some good shows on PBS, it's going ok. Last night PBS had a series about the Central Park Five, who were wrongly convicted of attacking and raping the Central Park jogger in about 1989. I remembered some of what went on but it was very interesting to watch. The kids were 15 and 16 years old at the time and for various reasons admitted to something they didn't do. They all went to prison for about 6 years. I do miss a few cable channels and wish I could watch the US Open (tennis) going on right now.

Mara, your meal with your brother & SIL sounded perfect. Mel, I like your new lamp too. Bliss, wow, snow already?! KBL, so sorry about your lonely doxie. Hello to everyone here. 👋. (I check in a lot but don't always have much to add.)

Micmel

Bev Jen~ and Candy~ you are both correct with what you have said. I got a video message from her. It was so nice to see her. I miss her cheerful smile. She’s dealing with some upcoming changes to her tx and that has her filled with anxiety. So let’s fire up our support engines. And drive into her pocket. I am hoping this new tx will be able to kick some major ass. She’s such a sweet woman. We have to send her positive vibes for sure. I wish I could hug her. Damn cancer. I hate you

moth

Happy Labour day! I was briefly a shop steward for my local union decades ago. I'm a solidarity forever kind of girl and half assed sing Billy Bragg's version of the internationale...i don't know all the words but i start strong: stand up, all victims of oppression! Then I start to fade... 🤣

Nothing here today. Supposed to be beautiful weather. I might wash some windows and play/train with Olive.

I watched the formula 1 race from Monza yesterday. Hubby and dd have been watching all season but I'm kind of meh about motorsport. But this was an exciting race and I'd heard there were upsets. It was fun.

Dd wants us to watch Knives Out tonight. I have to psyche myself because I lose interest in movies. I like short things lol. I can watch 4 episodes of a regular show in a row but ask me to commit to a movie and I'm all flustered. This little video describes me to a T

https://twitter.com/GKuhlenschmidt/status/1297343855906430978?s=19

Hugs

BevJen

Moth,

I saw Knives Out and I liked it -- not that everyone likes the same kind of movies, but it was quite entertaining -- kind of like a movie version of the game of Clue. Hope you like it -- it's easy to sit through.

Tanya_Djamila

Hi all

This thread moves fast.

Jumping in with pets in bed. I don’t like it. My friend asked if I didn’t like the sound of a cat purring in my ear in the morning-no I don’t. He goes outside at night on the lanai and then comes back in around 6:00. I close my bedroom door and try to go back to sleep which usually isn’t hard to do for a few more hours.

Mel the lamp is beautiful.

Moth ha ha I was a shop steward when I worked for the post office!

Booboo there is hope in sight! Maybe two weeks after this holiday we’ll get some relief. Most activities are outside so... I hope you get to change your medication. All the SE’s are awful but the hair loss puts it right in your face. Mae has a hilarious bald pic as uncle fester from the Adams family. Just says it all in the most humorous way.

Candy do you feel any better with your new dosing schedule? Wednesday I hope your ANC is great! I’ll be there for pocket duty.

Bliss hooray for snow that puts out fires. September is early though but maybe it won’t be around long.

I was watch on Netflix travels with my father. It’s hilarious dry humor to me but I like it.

Have a good day all.

Tana

illimae

I enjoyed knives out too.

For Philly:

candy-678

BevJen- I didn't forget about you. I had note you have MO appt tomorrow. My bad for missing you in roll call earlier. Pocket duty for ya.

Good to hear update from Philly. Wonder what her next treatment will be- first one after Ibrance for her. Hope she posts an update. Or Mel maybe you can give us an update if you hear from her.

Rosie- You are added to list for your MO visit. I like those rainy/thundery days. Today is sunny and hot-- 90 degrees with humidity.

Tanya- I feel no different. A friend asked me yesterday if I felt like my numbers will be up. I have no idea. I cannot tell when they are low--- didn't feel any different with the ANC of 500 a few weeks ago.

BevJen

Candy,

Thanks for remembering and yes, I do have an MO visit tomorrow. Still awaiting the results of my MRI of my liver/abdomen last Friday, but decided to give myself some peace and not try to track down a paper copy of the report, which would have been available on Saturday (very unlike me...) I think it should pop up on my patient portal tomorrow, but if not, my MO will have it even though she wasn't the ordering physician. I'm not expecting anything bad here, because I feel fine (but for the damn Ibrance tiredness) but as we all know, sometimes it just hits you from behind.

Anonymous

Candy - I am in the can on 30 September, with current MO call scheduled for 15th of October. However, I'm currently awaiting a referral letter to the potential new MO, so will have to see how that impacts things. No MO call this month, apparently I am now on the five minutes every two month schedule.

Mel - I like that mental image of the Living Room piled into a car and poppin' a wheelie as we drive a hot rod into Philly's pocket. Do we all have matching outfits like Grease? Is Mae driving with her cool sunglasses on?

There is an article in today's Guardian written by a young man about to pass from adenocarcinoma. I had read his first article at the start of the pandemic, and had wondered about him the other day. Its a very insightful piece, and some of the comments are very nice. He has a wonderful attitude but warning, may cause tears:

https://www.theguardian.com/commentisfree/2020/sep...

Dentist tomorrow so a trip into town, and then Wednesday as well for lunch with my work husband. Haven't seen him in person since March and can't wait, especially since we are finally trying this fancy pizza place he owes me on a bet he lost last year.

candy-678

Sondra- You are on my list. "In the can"? CT, PET? Not heard that term before. Haha.

Anonymous

Just a CT with contrast this time for the usual pelvic area.

mara51506

Lovely dog photos Mel. I can tell how much you love him.

KBL, sorry to hear that the other dog at the home is sad. I am not always sure we understand how an animal processes the loss of a member of the family, but I do definitely think they feel it for a long time.

My brother's Great Pyrenees Samson was all over me, though he had not actually seen me since Christmas last year. Just excited. I am sure my DB won't mind me sharing this photo of his dog.

Micmel

that dog is beautiful! They are known to be great dogs.

KBL

Thank you, Rosie and Candy. I truly believe she misses my husband and not my other dog. She goes everywhere with him, and he left the day after putting our dog down. She is going to be over the moon to see him again. Her sadness will melt away. I told him he’s not allowed to go anywhere without her anymore. I truly feel she was brought into our lives to be his companion

mara51506

Yes, Samson is a handsome dog. My brother is very happy with him. Their previous dog Sable was also beautiful and a Great Pyrenees as well. She was a quieter dog as well.

Micmel

tag won't eat anything but wet food now. No more kibble. He isn't walking much. But goes out to do his business. As long as he can do that. He yelps sometimes and keeps my husband awake It's rough. The time is approaching I believe.

mara51506

Mel, I am sorry for Tag. Hard to watch them struggling. He is lucky to have loving family who take such good care of him while he is ailing. Thinking of you and your family as well, especially Tag.

Micmel

Lol Sondra well Thelma and Louise it!
She sounded strong but I could see the anxiety in her eyes. I just wish there was something I could do for her This next txbetter be a good one. I wish she knew how much she was being thought of.

Lee64

Candy - So thoughtful of you to remember my scan results for this week! As it turned out, my Onc called me on Sat. evening at 7 p.m. to give me the results of the lab tests and scan. He didn't want me to fret about it until Tues. I couldn't believe it! My lab work was fine except for glucose which was really high and he attributed it to Ibrance but said we would watch it. The scan was stable except for a newly appreciated 6mm nodule in my lung. The RO favored that it was from an infection but will watch it on next scan in Dec. Should I be worried about that now or jus hope it is from infection? I continue to have trouble with healing of the tooth extraction; bone was exposed so I had to take penicillin for 10 days and now have to skip my Xgeva injection for the 3rd month! I see the oral surgeon in early Oct. and hope it is healed completely by then.

When in the world are these telehealth things going to be over?? I am tired of never seeing a Dr. face to face! It just isn't the same and I think a lot of things don't get covered, like listening to heart and lungs.

In the pocket for everyone having tests or waiting for results. Candy, I hope your new Ibrance schedule works well for you.

illimae

Sondra, I am definitely driving with cool sunglasses, I love that image!

Off to bed. Big chat with MO tomorrow about all the questions, hopefully answered in full.

Sunshine99

Illimae, have been thinking about your upcoming appointment. I guess the phrase is that I'll be in your pocket tomorrow.

On a humorous (or not, depending on your sense of humor) note, my husband, who is an avid outdoors man (surfing, hiking, rock climbing) said that he wants to climb a bunch of rocks and fall off and die so that he dies before me. I told him he can't do that because I need his insurance! He's actually very careful, which I appreciate.

candy-678

Lee- I think lung nodules can be pretty common. I think waiting until Dec's scan sounds good. May be completely gone then. I think telehealth depends on your areas Covid rates and your doc. I have an in-person appt with my MO Sept 28. But I am having scans that day too. Cannot do scans virtually. Haha. But I think we are doing appts around here in person for the most part.