My Husband, My Life, My Love, My Family, My Cancer

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  • candy-678
    candy-678 Member Posts: 3,950
    edited May 2020

    Morning all. I was up at 5:30 today. Cat up and moving and I was awake, so might as well get up.

    Happy Memorial Day to all. Some will cook out. But probably not too many parties, I would guess. I am staying inside the AC today. Just cannot tolerate the heat anymore. Today to be sunny and mid 80's and humid with a chance of thunderstorms. Plus, living by myself, I am not going to cook out for 1. So a day of TV, book, and checking in with you all.

    Happy 50th Birthday to Mel !!!! With your brother and all, I hope I don't upset you. I hope you have a good day.

    So I am going back and forth on the scan results issue. I have my MO appt tomorrow morning, scan done last Wednesday afternoon. First I think, all is ok or the MO would have called me. Then I think, maybe there is progression and she didn't move the results to the patient portal because she doesn't want me to see them until she talks with me. Then I think, maybe she hasn't even seen them herself-- she had Thurs and Friday off, I think, then the weekend, then the Holiday. They are probably ok. I was stable 3 months ago. I don't FEEL any different. But I am getting nervous.

    I am glad I have you guys and Mel's Living Room. I have not voiced any of this to anyone else. No one "gets it" like you all. This cancer can really be lonely and such a private battle.

  • 50sgirl
    50sgirl Member Posts: 2,527
    edited May 2020

    Happy 50th birthday, Mel. WOOHOO!! I hope that you find some joy in today’s celebration. 🎈🎈🎈🎁🎁🎁🎐🎂🎂🎂🌷🌷

  • BevJen
    BevJen Member Posts: 2,523
    edited May 2020

    Happy Birthday to Mel. Try to have some joy in your life today even as you ponder the heavier things going on. And eat some cake!

    Candy, I know that it's hard to wait for your scan results. Take a deep breath and just for today, assume that your MO hasn't done anything with your results -- as you said, perhaps even not seeing them -- and for today at least, assume that all is stable and that's why you haven't heard anything. Unfortunately, I don't think our MOs realize how much we wait for these results and how much it impacts us when we don't see them.

    Hope you have a good book to read today and that you can find some peace as you wait for your results.

  • mara51506
    mara51506 Member Posts: 5,088
    edited May 2020

    I know your brother is having a rough time of it, and I am sorry you are all dealing with that but I still want to say......

    image

  • candy-678
    candy-678 Member Posts: 3,950
    edited May 2020

    Thanks BevJen. I guess I want to think our MO's have it all under control, you know. I just would like to think the docs are reviewing our cases and are on top of things. She would say.... " Ok there is progression, but I have been thinking and researching and our next step is ___". But I have to also understand she is young with 3 small kids and she is probably busy this Holiday weekend with her family and she is certainly not thinking of me and my cancer. And if she has not seen the results, we will learn them together at the appt. Not the way I wish it was.

    I will be ok today. Looking forward to a TV movie tonight... about Lorena Bobbitt and that case from the past. Sounds like a good movie.

    Just voicing my scan concerns here because I know you all would understand.

  • Rosie24
    Rosie24 Member Posts: 1,046
    edited May 2020

    Happy birthday Mel. 🌸. I hope there is something for you to enjoy today, maybe just reaching the milestone of 50 and a nice meal prepared by your DH? Your brother’s situation is a difficult one. I’ve not experienced stroke in my family but I hope he recovers well like I think many do. I’m sure you’ve been a great support for him already.

    Candy, Boy do I know about your mind going all over the place while waiting for results. Do you think your doc would understand the anxiety if you brought it up? And hopefully would suggest a way to get the results to you ASAP in the future? The holiday weekend worked against you this time too. I usually don’t see my MO until a week after the scan so I call after about three days and the nurse reads me the summary over the phone. I also see my MO every other month so the scans are more like 4 months apart. Who knows how my new MO will do things after July. Good luck, please report back!! 🌺

    Runor, You have a way with words. 😊

    Tanya, Hello! That’s so kind of you to reply to so many of us! I have trouble remembering the posts I can’t scroll back to.. I hope you’re staying cool and comfortable. 🌻

  • Simone80
    Simone80 Member Posts: 988
    edited May 2020

    Happy Birthday Mel!

  • Micmel
    Micmel Member Posts: 9,450
    edited May 2020

    Thank you very much ladies. So far it’s been a great day!!no complaints here. Never thought I’d see fifty If I’m honest! Hope everyone enjoys their day as well. The sun is shining here. Love to all!

  • Micmel
    Micmel Member Posts: 9,450
    edited May 2020

    lynne(50)’s thank you so very much I adore seeing you here so much. I think of you everyday. I think you’re an amazing woman. Sending gentle hugs

  • LillyIsHere
    LillyIsHere Member Posts: 830
    edited May 2020

    I stopped by to say Happy Birthday to a wonderful Lady, MicMel. I wish you many, many happy birthdays, to host this amazing living room for years to come and to tell the youngsters about the times of Convid-19 and when the time when cure for cancer was found :)

    Happy Birthday!

    Birthday Flowers GIFs | Tenor

  • DodgersGirl
    DodgersGirl Member Posts: 2,382
    edited May 2020

    Happy 50th birthday, Micmel!

    Hope your day is spirited and fun even as we all keep your fingers crossed for good results for your brother’s recovery

    Thinking of you and your family today

  • ShetlandPony
    ShetlandPony Member Posts: 4,924
    edited May 2020

    Mel, I’m sorry you are worried about your brother now. Why does life keep knocking us down, eh? It sounds like he is already doing fairly well. It will be important for him to start therapy as soon as possible. People do make amazing recoveries, so there is lots of hope!

    Speaking of hope, you made it to 50! Half a century! Just keep going. Can I have a bite of that cake?

  • SandiBeach57
    SandiBeach57 Member Posts: 1,617
    edited May 2020

    Happy 50th Micmel!! Just popping in to say hello and hope your day is peaceful, especially with everything on your mind right now.

    Cake?

  • Anonymous
    Anonymous Member Posts: 1,376
    edited May 2020

    Happy birthday Mel - congrats on 50!!

  • santabarbarian
    santabarbarian Member Posts: 3,085
    edited May 2020

    Sending you a birthday hug!

  • Moomala
    Moomala Member Posts: 436
    edited May 2020

    Happy 50th Birthday Mel! I know you’ve got a lot on your mind But I hope you can find some happy moments throughout your special day!

  • Minnie31
    Minnie31 Member Posts: 501
    edited May 2020

    Happy Birthday Mel, hope you have a lovely day. I hope your brother makes a good recovery too.

    🍾🥂🎂🎁🎉

  • Micmel
    Micmel Member Posts: 9,450
    edited May 2020

    Thank you so very much. I am Very touched By all of the wishes. Thank you all for caring. My brother is hanging in there. I appreciate each and everyone of you ! Beautiful cake Lilly.. thank you just gorgeous!

    My dh arranged a zoom meeting celebration with 15 of my closest people to me. We all chatted for an hour. It was very thoughtful. I also got some lovely flowers a new phone and other awesome gifts. I am extremely blessed Today Was lovely. Thank you all for. Sharing this place with me. It means a lot. Everyday it's us, together. That's kinda cool!

  • JKL2017
    JKL2017 Member Posts: 437
    edited May 2020

    Happy 50th Birthday, Mel! This is a real milestone and it sounds like you had a lovely celebration. Your DH is definitely a keeper!

    I was so sorry to read about your brother’s stroke and, like so many here, I will keep him (and your entire family) in my prayers. It is so hard watching someone we love go through a difficult time but it is possible to recover from something like this. (And don’t forget to lean on on other people when you are feeling down.)

    Take care of yourself!!

  • Tanya_Djamila
    Tanya_Djamila Member Posts: 1,378
    edited May 2020

    Mel so happy to hear your day was good.

    My husband had a stroke in 2012 he was 62. He did physical and speech therapy afterwards. He has been going to acupuncture since then and it has extremely improved everything. You can barely tell he had a stroke no visible facial paralyzation or limp. I hope your brother gets some good physical therapy and healing.

    Really a nice treat to see so many help you celebrate 50

    Tanya

  • molliefish
    molliefish Member Posts: 723
    edited May 2020

    Happy Birthday on the day while there is still time.

  • Micmel
    Micmel Member Posts: 9,450
    edited May 2020

    Thank you ladies very much!!! I’m off to bed. Tanya I hope my dB is as lucky. Thanks for sharing that With. me. I appreciate it. Makes me feel Hopeful, but realize everyone is different! I just hope he’s ok. My mom has four kids. We are all now in our 50’s. Only for six Months. But all four of us. She was Crabbie today. Maybe she’s feeling exceptionally older. But it was a great day. I’m thankful. Sleep well everyone!

  • Micmel
    Micmel Member Posts: 9,450
    edited May 2020

    imageThese are my birthday flowers. I have more. Lol the purple one is so interesting to me, I don’t know what it’s called. Any flower ladies know ? MJH?? My dh got the other arrangement and made it up himself Bought a ton of flowers and put it together himself. He’s so romantic!!
    loving the flowers for sure.

  • Micmel
    Micmel Member Posts: 9,450
    edited May 2020

    imageOutside plant from my sweet friend. Chiefs mommy. The puppy I used to babysit. The St. Bernard. Gorgeous colors.

  • candy-678
    candy-678 Member Posts: 3,950
    edited May 2020

    Morning ladies.

    So I just signed off from my virtual MO visit. I wanted to post here how it went. Lasted about 10 minutes. MO said my scan "looks good" and no change in treatment. I told her I had not seen results yet and could she click for it to flow to patient portal. She said to give her till end of day to finish her in-box stuff. So I don't know specifics (size of liver met this time, etc). I will be looking for results so I can read them for myself- I read every word of the results and pick it to death, you all know what I mean. We discussed my upcoming dental appt and if I could have a cleaning. Yes to cleaning, but anything else would need to be off Xgeva for a period of time. No antibiotics before cleaning--doing on week off Ibrance. She did not say when I will "see" her next. So I need to verify next appt. I go to office this afternoon for blood draw, Lupron, and Port Flush.

    Thankful for no changes in treatment for now. Plan on using the next 3 months getting some things done that I need to do-- haircut next week (I hope), service vehicle, get new eyeglasses in July, etc. COVID lull before fall/winter surge and cancer "stable" till next scans. I still have to be careful about virus-- still cases in our area. But I want to do something other than sit in my house all day every day. Some things just need to get done. I will be careful though. No eating out, no in person church services, no crowds.

    Hugs.

  • Betrayal
    Betrayal Member Posts: 1,374
    edited May 2020

    Micmel: The potted plant next to your bouquet of flowers is called a cyclamen. You can put it outside over the summer but bring it in in the fall. Belated happy birthday. Seems like you had a great day.

  • Micmel
    Micmel Member Posts: 9,450
    edited May 2020

    Betrayal~Thank you very much. I should get it it's own pot I assume I don't know much about plants and I don't want to kill the poor thing. I love it. Outside... likes sun then. Noted Thank you for your sharedknowledge, I knew someone would know. 🤗

    Candy~So glad for your stable scans!!!!!💪🤗♥️🍾atta girl with no change in treatment either. Big deal! The virtual meetings I could get used to. Not going into see routine crap. Poke poke. How you feel? Anymore pain? Blah blah. Doing well (thank goodness) This way you see them, they issue medicine And off you go. I can hang with that! For sure. Congrats again!

    I'll try not to kill that pant. !

  • LoveFromPhilly
    LoveFromPhilly Member Posts: 1,308
    edited May 2020

    happppy birthday Mel!!!!

    image

  • Rosie24
    Rosie24 Member Posts: 1,046
    edited May 2020

    Candy, saying it again, so happy for your good results!! I will definitely enjoy getting my haircut. My appt is tomorrow. It may be interesting with wearing a mask but I’m up for the challenge. Enjoy your day now that the wait is over. 😊

  • Moomala
    Moomala Member Posts: 436
    edited May 2020

    Great News Candy!!! Woo Hoo!!!

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